02692nam 22005894a 450 991082625870332120200520144314.01-282-62748-197866126274841-84545-887-710.1515/9781845458874(CKB)2560000000012195(EBL)544418(OCoLC)645101955(SSID)ssj0000440044(PQKBManifestationID)12190629(PQKBTitleCode)TC0000440044(PQKBWorkID)10471328(PQKB)10638991(MiAaPQ)EBC544418(DE-B1597)636490(DE-B1597)9781845458874(EXLCZ)99256000000001219520081203d2009 uy 0engur|n|---|||||txtccrNegotiating risk British Pakistani experiences of genetics /Alison ShawNew York Berghahn Books20091 online resource (294 p.)Description based upon print version of record.1-84545-548-7 Includes bibliographical references (p. 253-274) and index.Medical and public perceptions of consanguineous marriage and genetic risk -- Close kin marriages : some anthropological theory and European history -- British Pakistani cousin marriages : balancing marital risks -- Medical surveillance and diagnostic uncertainty -- Responding to reproductive risk -- Foretelling and managing infant death -- Genetic screening and the extended family -- Genetic risk in context.Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a 'genetic diagnosis'. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated 'risk' of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural sterMedical geneticsGreat BritainConsanguinityGreat BritainPakistanisGreat BritainMedical geneticsConsanguinityPakistanis616/.042Shaw Alison1957-1644103MiAaPQMiAaPQMiAaPQBOOK9910826258703321Negotiating risk3989751UNINA