02885nam 2200613Ia 450 991081241850332120200520144314.01-281-10540-697866111054021-84642-630-81-4356-0305-2(CKB)1000000000410432(EBL)334121(OCoLC)191925933(SSID)ssj0000190676(PQKBManifestationID)11215647(PQKBTitleCode)TC0000190676(PQKBWorkID)10180337(PQKB)11520142(MiAaPQ)EBC334121(Au-PeEL)EBL334121(CaPaEBR)ebr10196747(CaONFJC)MIL110540(OCoLC)175292183(EXLCZ)99100000000041043220061026d2007 uy 0engur|n|---|||||txtccrLearning to live with Huntington's disease one family's story /Sandy Sulaiman1st ed.London ;Philadelphia Jessica Kingsley Publishers20071 online resource (178 p.)Description based upon print version of record.1-84985-716-4 1-84310-487-3 Cover; Title Page; Contents; THANK-YOUS; INTRODUCTION: 'THE MOST CRUEL DISEASE KNOWN TO MAN'; 1. The Eye of the Storm: Sandy's Story; 2. The Lucky One? The Sister's Story; 3. Lost and Found: The Older Son's Story; 4. 'Is Everyone All Right?' The Younger Son's Story; 5. EyesWide Open: The Daughter-in-law's Story; 6. Mopping the Ceiling: The Husband's Story; 7. A Cruel Inheritance: Brian's Story; 8. Tips for Living with Huntington's Disease; APPENDIX: USEFUL RESOURCES; REFERENCES; 'This is a moving true story of how people can find the inner strength to rise above it when their world is turned upside down.'. - Richard Branson. Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the suHuntington's diseaseBiographyHuntington's diseasePatientsFamily relationshipsHuntington's diseaseHuntington's diseasePatientsFamily relationships.616.8/510092BSulaiman Sandy1959-1614825MiAaPQMiAaPQMiAaPQBOOK9910812418503321Learning to live with Huntington's disease3944791UNINA