04216nam 22008172 450 991081151200332120240410093106.01-280-46532-897866104653231-4237-2168-390-474-0293-610.1163/9789047402930(CKB)1000000000033115(EBL)253657(OCoLC)666958971(SSID)ssj0000224552(PQKBManifestationID)11173426(PQKBTitleCode)TC0000224552(PQKBWorkID)10210049(PQKB)11247037(MiAaPQ)EBC253657(Au-PeEL)EBL253657(CaPaEBR)ebr10089747(CaONFJC)MIL46532(OCoLC)814454029(OCoLC)61394824(nllekb)BRILL9789047402930(EXLCZ)99100000000003311520200716d2003 uy 0engur|n|---|||||txtccrPopulations and Genetics Legal and Socio-Ethical Perspectives /edited by Bartha Maria Knoppers1st ed.Leiden;Boston :Brill | Nijhoff,2003.1 online resource (669 p.)Proceedings of the 3rd International DNA Sampling Conference held in Montreal, Québec, 2002.90-04-13678-9 Includes bibliographical references and index.Acknowledgements; In memoriam; Prologue; Contents; Section 1 - Of Biobanks and Databases; Section 2 - Of Populations and Communities; Section 3 - Of Commerce, Patents and Benefit-Sharing; Section 4 - Of Information and Discrimination; Epilogue - Statement of Principles on the Ethical Conduct of Human Genetic Research Involving PopulationsGenetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.Legal and Socio-Ethical PerspectivesBiological Specimen BanksethicsBiological Specimen Bankslegislation & jurisprudenceDatabases, GeneticethicsDatabases, Geneticlegislation & jurisprudenceDNA fingerprintingLaw and legislationCongressesGenetics, PopulationethicsGenetics, Populationlegislation & jurisprudenceHuman population geneticsMoral and ethical aspectsCongressesMedical geneticsLaw and legislationCongressesBiological Specimen Banksethics.Biological Specimen Bankslegislation & jurisprudence.Databases, Geneticethics.Databases, Geneticlegislation & jurisprudence.DNA fingerprintingLaw and legislationGenetics, Populationethics.Genetics, Populationlegislation & jurisprudence.Human population geneticsMoral and ethical aspectsMedical geneticsLaw and legislation344.04196Knoppers Bartha MariaInternational DNA Sampling ConferenceNL-LeKBNL-LeKBBOOK9910811512003321Populations and Genetics4113610UNINA