04170nam 22010095 450 991081144060332120230317002500.01-283-27749-297866132774970-520-94823-810.1525/9780520948235(CKB)2670000000066533(EBL)631047(OCoLC)699475041(SSID)ssj0000471947(PQKBManifestationID)11331383(PQKBTitleCode)TC0000471947(PQKBWorkID)10429620(PQKB)11635298(DE-B1597)518992(OCoLC)703172269(DE-B1597)9780520948235(MiAaPQ)EBC631047(EXLCZ)99267000000006653320200424h20102010 fg 0engurnn#---|u||utxtccrThe Paradox of Hope Journeys through a Clinical Borderland /Cheryl MattinglyBerkeley, CA :University of California Press,[2010]©20101 online resource (286 p.)Description based upon print version of record.0-520-26734-6 Front matter --Contents --Prologue --Acknowledgments --1. The Lobby --2. Narrative Matters --3. Border Trouble --4. Widening the Gap: The Creation of a Conflict Drama --5. Plotting Hope --6. Daydreaming: Captain Hook Gets Speech Therapy --7. Fleeting Hope --8. Narrative Phenomenology and the Practice of Hope --Notes --References --IndexGrounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances.African AmericansAfrican AmericansMedical careChronically ill childrenMedical careUnited StatesMedical anthropologyMedical careUnited StatesPoorUnited StatesSocial medicineUnited StatesMedical personnel and patientUnited Statesaffect theory.african american.chronic disease.chronic illness.class.clinical narrative.ethnography.family life.health care delivery.health policy.health.hospitals.living while dying.medical humanities.medicine.modern healthcare.multicultural.nonfiction.poverty.public hospitals.race.sick children.social issues.social science.terminal illness.urban hospital.urban life.African Americans.African AmericansMedical care.Chronically ill childrenMedical careMedical anthropologyMedical carePoorSocial medicineMedical personnel and patient362.198 92008996073Mattingly Cherylauthttp://id.loc.gov/vocabulary/relators/aut1131774DE-B1597DE-B1597BOOK9910811440603321The Paradox of Hope3927822UNINA