03381nam 2200625Ia 450 991081081730332120230617031309.00-309-16947-X1-280-18370-597866101837080-309-50215-2(CKB)111069351127542(EBL)3375163(SSID)ssj0000270942(PQKBManifestationID)11206522(PQKBTitleCode)TC0000270942(PQKBWorkID)10280595(PQKB)10410713(MiAaPQ)EBC3375163(Au-PeEL)EBL3375163(CaPaEBR)ebr10032349(CaONFJC)MIL18370(OCoLC)923254372(EXLCZ)9911106935112754220020906d2003 uy 0engur|n|---|||||txtccrWhen children die[electronic resource] improving palliative and end-of-life care for children and their families /Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editorsWashington, D.C. National Academy Pressc20031 online resource (712 p.)Description based upon print version of record.0-309-08437-7 Includes bibliographical references and index.""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Child�s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities""""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Life�s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care in Emergency Medical Services for Children""; ""Appendix G Education in Pediatric Palliative Care""; ""Appendix H Progress in Pediatric Palliative Care in New York State�A Demonstration Project""; ""Appendix I Committee Biographical Statements""; ""Index""Terminally ill childrenCareTerminally ill childrenFamily relationshipsPalliative treatmentTerminally ill childrenCare.Terminally ill childrenFamily relationships.Palliative treatment.362.1/75/083Field Marilyn J(Marilyn Jane)1610163Behrman Richard E.1931-630342Institute of Medicine (U.S.).Committee on Palliative and End-of-Life Care for Children and Their Families.MiAaPQMiAaPQMiAaPQBOOK9910810817303321When children die4023800UNINA