05403nam 2201405 a 450 991079095320332120230126205336.01-4008-4041-497866132909391-283-29093-610.1515/9781400840410(CKB)2550000001252140(EBL)784516(OCoLC)758374143(SSID)ssj0000536219(PQKBManifestationID)11346962(PQKBTitleCode)TC0000536219(PQKBWorkID)10546606(PQKB)11039704(MiAaPQ)EBC784516(StDuBDS)EDZ0000515055(MdBmJHUP)muse37047(DE-B1597)447680(OCoLC)979779984(DE-B1597)9781400840410(Au-PeEL)EBL784516(CaPaEBR)ebr10503237(CaONFJC)MIL329093(EXLCZ)99255000000125214020110425d2011 uy 0engurcn|||||||||txtccrThe enculturated gene[electronic resource] sickle cell health politics and biological difference in West Africa /Duana FullwileyCourse BookPrinceton, N.J. Princeton University Press20111 online resource (727 p.)Description based upon print version of record.0-691-12317-9 0-691-12316-0 Includes bibliographical references and index.Introduction: the powers of association -- Healthy sicklers with "mild" disease: local illness affects and population-level effects -- The biosocial politics of plants and people -- Attitudes of care -- Localized biologies: mapping race and sickle cell difference in French West Africa -- Ordering illness: heterozygous "trait" suffering in the land of the mild disease -- The work of patient advocacy -- Conclusion: economic and health futures amid hope and despair.In the 1980's, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell ""mild"" in a social setting where public health priorities and economic austerity programs have forced people toSickle cell anemiaSocial aspectsSenegalSickle cell anemiaGenetic aspectsSickle cell anemiaPatientsServices forSenegalGenetic disordersSocial aspectsSenegalKinshipHealth aspectsSenegalAfrica.African anthropology.African genetics.African sicklers.Albert Royer Children's Hospital.CNTS.Centre nationale de transfusion sanguine.DNA haplotypes.DNA sequences.HbAS.International Organization for the Fight against Sickle Cell.National Blood Transfusion Center.OILD.RFLP.Restriction Fragment Length Polymorphism.Senegal.Senegalese attitudes.Senegalese sickle cell.alternative care.biological expressions.biosocial politics.culture.disease experiences.disease expression.economic austerity.economically triaged care.ethnic population purity.fagara.genetic difference.genetic sequence.geneticists.global health problems.global health.healing practices.health intervention.health.healthy sicklers.heterozygous sickle cell.low-tech strategy.multilateral institutions.normalization techniques.patient advocacy.political apathy.population.public health.public neglect.self-care.sickle cell DNA markers.sickle cell anemia.sickle cell gene.sickle cell research.sickle cell trait.sicklers.social networks.traditional plants.vitality.Sickle cell anemiaSocial aspectsSickle cell anemiaGenetic aspects.Sickle cell anemiaPatientsServices forGenetic disordersSocial aspectsKinshipHealth aspects362.196/15271009663Fullwiley Duana1465353MiAaPQMiAaPQMiAaPQBOOK9910790953203321The enculturated gene3675338UNINA