03348oam 2200673I 450 991079047690332120230725032630.01-134-02628-51-283-45813-697866134581311-134-02629-30-203-89138-410.4324/9780203891384 (CKB)2670000000148152(EBL)957194(OCoLC)798532826(SSID)ssj0000652776(PQKBManifestationID)11380750(PQKBTitleCode)TC0000652776(PQKBWorkID)10642062(PQKB)11153986(MiAaPQ)EBC957194(Au-PeEL)EBL957194(CaPaEBR)ebr10533774(CaONFJC)MIL345813(OCoLC)785431758(EXLCZ)99267000000014815220180706d2011 uy 0engur|n|---|||||txtccrGenetic testing accounts of autonomy, responsibility and blame /Michael Arribas-Ayllon, Srikant Sarangi and Angus ClarkeAbingdon, Oxon :Routledge,2011.1 online resource (219 p.)Genetics and societyDescription based upon print version of record.1-138-01996-8 0-415-47443-4 Includes bibliographical references and index.Front Cover; Genetic Testing; Copyright Page; Contents; Acknowledgements; List of abbreviations; 1. Introduction; 2. Genetic testing: technology in context; 3. Neo-liberalism and the new genetics; 4. Rhetorical discourse analysis; 5. Personal genomics and the media; 6. Family accounts of genetic responsibility; 7. Accounts of genetic testing in the clinic; 8. Professional accounts of ethical challenges in the prenatalgenetics clinic; 9. Conclusion; Appendix: transcription conventions; Notes; Bibliography; Index"Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals. This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail"--Provided by publisher.Genetics and society.Genetic screeningMoral and ethical aspectsMedical geneticsGenetic screeningMoral and ethical aspects.Medical genetics.174.2/96042Arribas-Ayllon Michael.1552150Clarke Angus1954-1505430Sarangi Srikant1956-262168MiAaPQMiAaPQMiAaPQBOOK9910790476903321Genetic testing3811948UNINA