03222nam 2200673 a 450 991078234010332120230721033218.01-281-73374-197866117337421-84642-731-2(CKB)1000000000552525(EBL)350331(OCoLC)291091399(SSID)ssj0000121109(PQKBManifestationID)11999426(PQKBTitleCode)TC0000121109(PQKBWorkID)10093095(PQKB)10643741(MiAaPQ)EBC350331(Au-PeEL)EBL350331(CaPaEBR)ebr10233830(CaONFJC)MIL173374(EXLCZ)99100000000055252520070607d2008 uy 0engur|n|---|||||txtccrChildren with complex and continuing health needs[electronic resource] the experiences of children, families and care staff /Jaqui Hewitt-TaylorLondon ;Philadelphia Jessica Kingsley Publishers20081 online resource (211 p.)Description based upon print version of record.1-84985-402-5 1-84310-502-0 Includes bibliographical references and indexes.Children with complex and continuing needs -- Being a child or young person with complex needs -- Being the parent of a child who has complex needs -- Premature babies -- Families whose children have complex needs -- Diagnosis -- Support -- Healthcare -- Education -- Society -- Working with children and families -- Conclusion.'This book draws on the experiences of a number of families to provide a valuable and deeply moving insight into what it means to raise a child with complex needs. It highlights both the joys and the challenges that families face. In doing so it raises important issues about how services in the UK are currently responding to children with complex needs and their families as well as pervasive disablist attitudes within society. This book will provide students and practitioners from a range of disciplines with a valuable window into families' lives and challenge them to reflect on how they are sChronically ill childrenCareChildren with disabilitiesCareChronically ill childrenRehabilitationChildren with disabilitiesRehabilitationChronically ill childrenFamily relationshipsChildren with disabilitiesFamily relationshipsChronically ill childrenCare.Children with disabilitiesCare.Chronically ill childrenRehabilitation.Children with disabilitiesRehabilitation.Chronically ill childrenFamily relationships.Children with disabilitiesFamily relationships.618.92Hewitt-Taylor Jaqui872026MiAaPQMiAaPQMiAaPQBOOK9910782340103321Children with complex and continuing health needs3680076UNINA