03578nam 2200613Ia 450 991078115400332120230725045053.01-282-55492-197866125549260-85700-200-7(CKB)2550000000012659(EBL)516942(OCoLC)682621358(SSID)ssj0000422245(PQKBManifestationID)11282623(PQKBTitleCode)TC0000422245(PQKBWorkID)10417034(PQKB)10334769(MiAaPQ)EBC516942(Au-PeEL)EBL516942(CaPaEBR)ebr10384026(CaONFJC)MIL255492(EXLCZ)99255000000001265920090501d2010 uy 0engur|n|---|||||txtccrLiving with learning disabilities, dying with cancer[electronic resource] thirteen personal stories /Irene Tuffrey-Wijne; foreword by Sheila RollinsLondon ;Philadelphia Jessica Kingsley20101 online resource (274 p.)Description based upon print version of record.1-84985-612-5 1-84905-027-9 Includes bibliographical references and index.FRONT COVER; Living with Learning Disabilities, Dying with Cancer:Thirteen Personal Stories; Contents; ACKNOWLEDGEMENTS; Foreword by Professor Sheila Hollins; PREFACE; Chapter 1:Three Stories; John Davies; Vincent Sweeney; Nick Ballard; Chapter 2: Diagnosis and Treatment; Lily Lamb; The cancer diagnosis; Cancer treatments; Summary; Chapter 3:Truth-telling and Understanding; Lily Lamb's understanding of cancer; Were people told the truth?; Understanding cancer and dying; Sally Burnett: 'Don't tell her'; Breaking bad news; Summary; Chapter 4:Family and Friends; Lily Lamb and her familyThe importance of familiesPete Carpenter and his sister Daphne; Friends; Summary; Chapter 5:Unprepared Services, Inexperienced Carers; Lily Lamb and her carers; Pete Carpenter and his carers; Services were not prepared for death; The emotional impact of caring; Health care professionals; Summary; Chapter 6:Dependent Lives; The story of Lily Lamb's life; Deprivation and dependence; Forced jollity; The importance of listening; Summary; Chapter 7:Resilience; Richard Horwood: 'Don't ever give up'; The features of resilience; Summary; Chapter 8:Dying and Beyond; Lily Lamb's death; Dying; FuneralsGrieving and rememberingSummary; Chapter 9:Learning Lessons; What did people want and need?; Conclusion; APPENDIX 1: THE PEOPLE IN THIS BOOK; APPENDIX 2: METHODS; ENDNOTES; RESOURCES; REFERENCES; INDEXThis book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers.CancerPatientsGreat BritainBiographyLearning disabledGreat BritainBiographyCancerPatientsLearning disabled362.196/9940092BTuffrey-Wijne Irene1963-1515303MiAaPQMiAaPQMiAaPQBOOK9910781154003321Living with learning disabilities, dying with cancer3750958UNINA