03454nam 2200613Ia 450 991078079500332120221108035509.01-282-35177-X97866123517780-300-15177-210.12987/9780300151770(CKB)2430000000010699(StDuBDS)AH23050008(SSID)ssj0000313439(PQKBManifestationID)11274002(PQKBTitleCode)TC0000313439(PQKBWorkID)10358552(PQKB)10127129(DE-B1597)484859(OCoLC)593242110(DE-B1597)9780300151770(Au-PeEL)EBL3420613(CaPaEBR)ebr10348510(CaONFJC)MIL235177(OCoLC)923594737(MiAaPQ)EBC3420613(EXLCZ)99243000000001069920080211d2008 uy 0engur|||||||||||txtccrThe woman who walked into the sea[electronic resource] Huntington's and the making of a genetic disease /Alice WexlerNew Haven Yale University Pressc20081 online resource (288 p.) Bibliographic Level Mode of Issuance: Monograph0-300-10502-9 Includes bibliographical references (p. 189-241) and index.Frontmatter -- Contents -- Foreword -- Acknowledgments -- Introduction -- 1. The Death of Phebe Hedges -- 2. The Social Course of St. Vitus's Dance -- 3. Inventing Hereditary Chorea -- 4. Chorea and the Clinical Gaze -- 5. The Eyes of Elizabeth B. Muncey, M.D. -- 6. Myths of Origins and Endings -- Abbreviations -- Notes -- IndexWhen Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded disorder of movement, mind, and mood her neighbors called St.Vitus's dance. Doctors later spoke of Huntington's chorea, and today it is known as Huntington's disease. This book is the first history of Huntington's in America. Starting with the life of Phebe Hedges, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge among ordinary people as well as scientists and physicians. She addresses these themes through three overlapping stories: the lives of a nineteenth-century family once said to "belong to the disease"; the emergence of Huntington's chorea as a clinical entity; and the early-twentieth-century transformation of this disorder into a cautionary eugenics tale. In our own era of expanding genetic technologies, this history offers insights into the social contexts of medical and scientific knowledge, as well as the legacy of eugenics in shaping both the knowledge and the lived experience of this disease. Huntington's choreaNew York (State)History19th centuryHuntington's choreaNew York (State)History20th centuryHuntington's choreaHistoryHuntington's choreaHistory616.8/510097471Wexler Alice1942-1555731MiAaPQMiAaPQMiAaPQBOOK9910780795003321The woman who walked into the sea3817870UNINA