05715nam 22007334a 450 991046298700332120200520144314.01-934559-06-797866119748791-281-97487-01-61705-083-0(CKB)2670000000317018(EBL)1160343(SSID)ssj0000102761(PQKBManifestationID)11622508(PQKBTitleCode)TC0000102761(PQKBWorkID)10060648(PQKB)11171198(SSID)ssj0000782626(PQKBManifestationID)12344171(PQKBTitleCode)TC0000782626(PQKBWorkID)10747097(PQKB)11454781(MiAaPQ)EBC289750(MiAaPQ)EBC1160343(Au-PeEL)EBL289750(CaPaEBR)ebr10118498(CaONFJC)MIL197487(OCoLC)437177207(EXLCZ)99267000000031701820040812d2005 uy 0engur|n|---|||||txtccrAmyotrophic lateral sclerosis[electronic resource] /Robert G. Miller, Deborah Gelinas, Patricia O'ConnorNew York Demos Medical Pub.c20051 online resource (280 p.)Description based upon print version of record.1-932603-06-9 1-936287-43-9 Includes bibliographical references and index.Cover; Title; Copyright; Contents; Preface; Contributors; Chapter 1: What Is ALS?; Definitions; Motor Neuron System and Motor Neurons; ALS and Frontotemporal Dementia; ALS Lookalikes: Differential Diagnosis; Sporadic, Familial, and Western Pacific ALS; Familial ALS; Western Pacific ALS/PDC; Clinical Phenomenology: Onset and Spread; Pathophysiology at Tissue and Cellular Level; Descriptive Epidemiology of Sporadic ALS/MND; Environmental Risk Factors: Analytic Epidemiology; ALS as One of the System Degeneration Diseases; References; Chapter 2: Neurological Assessment and Medical ManagementWhen to Suspect ALSHow to Diagnose ALS; ALS Mimics; Breaking the News; Assessments That are Important for Patient Care; Predicting Progression; Caring for Patients with ALS; Managing Common Symptoms; Pros and Cons of Specific ALS Therapies; Alternative and Off-Label Treatments; Resources Available to ALS Patients and Their Families; References; Chapter 3: Nursing: Care and Coordination; A Lasting Impression: The Day of Diagnosis; Coordination of the Multidisciplinary Clinic; The Nurse as the Glue that Holds It All Together; Preparing for Clinic DayEssential Patient Evaluations at Every ClinicKeeping the Day Organized; Communication Between Team Members on Clinic Day; Take-Home Messages for Patients; Post-Clinic Meeting; A Little Bit of Everything: Essentials of Each Discipline That the Nurse Must Know; Social Work; Speech and Swallowing; Patient Education; Special Issues; Resources for Professional Development; Visiting Established ALS Centers; Research Opportunities for Patients; Caring for the Caregiver; References; Chapter 4: Speech and Swallowing Interventions; Speech Features of ALS; Motor Speech/Dysarthria; VoiceSpeaking Rate and IntelligibilityCommunication Effectiveness; Assessments; Dysarthria; Voice; Intelligibility; Communication Effectiveness; Speech Staging; Interventions; Compensatory Strategies; Voice Banking; Timing Referrals for AAC; Patient and Caregiver Education; Swallowing Features of ALS; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Sensory Differences for ALS; Swallowing Assessment; Oral Phase Swallowing; Pharyngeal Phase Swallowing; Time to Consume Meals; MBSS/FEES; Timing Referrals for Percutaneous Endoscopic Gastrostomy (PEG); Interventions; Exercises; Swallowing SafetyConserving EnergyManaging Secretions; References; Chapter 5: Nutrition and Nutrition Therapy; A Well-Balanced Diet; Nutritional Challenges in ALS; Integrated Approach to Nutritional Management in ALS; Diet Modification and Eating Strategies; Problems with Self Feeding; Chewing and Swallowing Difficulties; Diet Modification to Increase Calories; Hydration; Constipation; Determine if a Patient Is in Positive or Negative Energy Balance; Recommending a G-Tube as an Alternative Route for Nutritional Intake if EI < TDEE; Risk Stratification for G-Tube Insertion Based on %FVC; Dietary SupplementsResources for People with ALS and CaregiversAmyotrophic Lateral Sclerosis: A Patient Care Guide for Clinicians is intended as a practical reference for clinicians caring for ALS patients, and will bring together the collective wisdom of those at the forefront of patient-oriented research and practice. This will be an official project of the ALS Research Group (founded by Dr. Mitsumoto and currently headed by Dr. Bedlack), and provides both an evidence-based and experience-based guide to multidisciplinary ALS care. The book will begin with a brief review of current concepts of ALS including diagnostic criteria, genetic and sporadic subtyAmyotrophic lateral sclerosisPopular worksElectronic books.Amyotrophic lateral sclerosis616.8/3Miller Robert G(Robert Gordon),1942-890345Gelinas Deborah F(Deborah Faith),1956-890346O'Connor Patricia1954-890347MiAaPQMiAaPQMiAaPQBOOK9910462987003321Amyotrophic lateral sclerosis1988940UNINA