02700nam 2200589Ia 450 991045443440332120200520144314.01-317-14148-21-281-83410-697866118341040-7546-8928-X(CKB)1000000000556404(EBL)438280(OCoLC)567983727(SSID)ssj0000149821(PQKBManifestationID)11910542(PQKBTitleCode)TC0000149821(PQKBWorkID)10238969(PQKB)11139867(MiAaPQ)EBC438280(Au-PeEL)EBL438280(CaPaEBR)ebr10254927(CaONFJC)MIL922491(EXLCZ)99100000000055640420080125d2008 uy 0engur|n|---|||||txtccrEthical issues in governing biobanks[electronic resource] global perspectives /edited by Bernice Elger ... [et al.]Aldershot, England ;Burlington, VT Ashgate Pub. Ltd.c20081 online resource (268 p.)Description based upon print version of record.0-7546-7255-7 Includes bibliographical references and index.Cover; Contents; Notes on the Contributors; Acknowledgements; 1 Introduction: Biobanks, Genomics, and Research-A Nightmare for Public Policy Makers?; PART I: RESEARCH BIOBANKS: CURRENT STATUS AND DEBATES; PART II: CONSENSUS AND CONTROVERSIES AMONG INTERNATIONAL EXPERTS CONCERNING ISSUES RAISED BY GENETIC DATABASES; PART III: SHAPING THE FUTURE LEGAL AND ETHICAL DEVELOPMENT OF GENETIC DATABASES; IndexPopulation genomics research drawing on genetic databases has expanded rapidly, with some of this information being combined in 'biobanks'. Managing this information in an appropriate way is a highly complex ethical issue in the health policy arena. This book combines theoretical and empirical research to analyze the areas of conflict and consensus in the regulatory and ethical frameworks that have been developed to govern biobanks.Human geneticsDatabasesLaw and legislationHuman geneticsDatabasesMoral and ethical aspectsElectronic books.Human geneticsDatabasesLaw and legislation.Human geneticsDatabasesMoral and ethical aspects.174.2Elger Bernice960281MiAaPQMiAaPQMiAaPQBOOK9910454434403321Ethical issues in governing biobanks2264109UNINA