03618nam 22007454a 450 991045387940332120200520144314.01-281-95679-197866119567900-226-21311-010.7208/9780226213118(CKB)1000000000578868(EBL)408322(OCoLC)476228541(SSID)ssj0000178073(PQKBManifestationID)11167381(PQKBTitleCode)TC0000178073(PQKBWorkID)10235105(PQKB)10480609(MiAaPQ)EBC408322(DE-B1597)523914(OCoLC)1058394972(DE-B1597)9780226213118(Au-PeEL)EBL408322(CaPaEBR)ebr10271875(CaONFJC)MIL195679(EXLCZ)99100000000057886820061129d2007 uy 0engur|n|---|||||txtccrInclusion[electronic resource] the politics of difference in medical research /Steven EpsteinChicago University of Chicago Press20071 online resource (427 p.)Chicago studies in practices of meaningDescription based upon print version of record.0-226-21309-9 Includes bibliographical references (p. [311]-394) and index.How to study a biopolitical paradigm -- Histories of the human subject -- The rise of resistance : framing the critique of the standard human -- The path to reform : aligning categories, targeting the state -- Opposition to reform : controversy, closure, and boundary work -- Formalizing the new regime -- From the standard human to niche standardization -- Counts and consequences : monitoring compliance -- The science of recruitmentology and the politics of trust -- To profile or not to profile : what difference does race make? -- Sex differences and the new politics of women's health -- Whither the paradigm?With Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions. Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men—and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clinChicago studies in practices of meaning.MedicineResearchSocial aspectsUnited StatesHuman experimentation in medicineSocial aspectsUnited StatesClinical trialsSocial aspectsUnited StatesMinoritiesMedical careUnited StatesHealth and raceUnited StatesSocial medicineUnited StatesElectronic books.MedicineResearchSocial aspectsHuman experimentation in medicineSocial aspectsClinical trialsSocial aspectsMinoritiesMedical careHealth and raceSocial medicine610.72Epstein Steven250913MiAaPQMiAaPQMiAaPQBOOK9910453879403321Inclusion2026998UNINA