03588nam 2200685Ia 450 991045247480332120210908232751.00-520-94504-210.1525/9780520945043(CKB)2550000001039302(EBL)1593894(OCoLC)834604067(SSID)ssj0000836280(PQKBManifestationID)11461969(PQKBTitleCode)TC0000836280(PQKBWorkID)11007787(PQKB)10995354(MiAaPQ)EBC1593894(DE-B1597)519770(DE-B1597)9780520945043(Au-PeEL)EBL1593894(CaPaEBR)ebr10675755(EXLCZ)99255000000103930220081218d2009 ub 0engur|n|---|||||txtrdacontentcrdamediacrrdacarrierUncertain suffering[electronic resource] racial health care disparities and sickle cell disease /Carolyn Moxley RouseBerkeley :University of California Press,[2009]1 online resource"The George Gund Foundation imprint in African American studies"--P. facing t.p.0-520-25912-2 0-520-25911-4 Includes bibliographical references and index.Frontmatter --Contents --Preface --Acknowledgments --Introduction --Part 1. The Questions --Part 2. Reforming the System --Notes --References --IndexOn average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Her book is a compelling look at the ways in which the politics of racism, attitudes toward pain and suffering, and the reliance on charity for healthcare services for the underclass can create disparities in the U.S. Instead of burdening hospitals and clinics with the task of ameliorating these disparities, Rouse argues that resources should be redirected to community-based health programs that reduce daily forms of physical and mental suffering.Sickle cell anemiaPatientsUnited StatesDiscrimination in medical careUnited StatesHealth services accessibilityUnited StatesMinoritiesMedical careUnited StatesRace discriminationUnited StatesSocial medicineUnited StatesElectronic books.Sickle cell anemiaPatientsDiscrimination in medical careHealth services accessibilityMinoritiesMedical careRace discriminationSocial medicine362.196/15270089Rouse Carolyn Moxley1965-1032796MiAaPQMiAaPQMiAaPQBOOK9910452474803321Uncertain suffering2466091UNINA