1.

Record Nr.

UNISA996384490203316

Autore

Awdelay John <fl. 1559-1577.>

Titolo

A godly ditty or prayer to be song vnto God [[electronic resource] ] : for the preseruation of his Church, our Queene and realme, against all traytours, rebels, and papisticall enemies

Pubbl/distr/stampa

Imprynted at London, : by Iohn Awdely., [1569?]

Descrizione fisica

1 sheet ([1] p.)

Soggetti

Great Britain History Elizabeth, 1558-1603 Poetry Early works to 1800

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Signed: Quoth Ioh. Awdely.

Publication date suggested by STC.

"Syng this after the tune of the .cxxxvy. Psalme, which begins VVhen as we sat in Babilon, or such lyke."

Verse: "Preserue thy seruaunt Lord ..."

Printed in two columns.

Reproduction of original in the British Library.

Sommario/riassunto

eebo-0018



2.

Record Nr.

UNISA996386889003316

Autore

Peacham Henry <1576?-1643?>

Titolo

Sqvare-caps turned into rovnd-heads, or, The bishops vindication and the brownists conviction [[electronic resource] ] : being a dialogue between time and opinion : shewing the folly of the one and the worthinesse of the other / / by H. P

Pubbl/distr/stampa

London, : Printed for I. Gyles, and G. Londsey, 1642

Descrizione fisica

8 p

Soggetti

Roundheads

Great Britain Religion 17th century

Great Britain History Charles I, 1625-1649

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Illustrated t.p.

Reproduction of original in Thomason Collection, British Library.

Sommario/riassunto

eebo-0158



3.

Record Nr.

UNISA996509968103316

Autore

Birmingham Karen

Titolo

Pioneering Ethics in a Longitudinal Study : The early development of the ALSPAC Ethics and Law Committee

Pubbl/distr/stampa

Bristol : , : Policy Press, , 2018

©2018

Edizione

[1st ed.]

Descrizione fisica

1 online resource (136)

Soggetti

Age groups: children

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Nota di contenuto

Front Matter -- Contents -- List of figures and photographs -- List of abbreviations -- Authors and contributors, with current positions -- Acknowledgements -- Foreword -- Preface -- Introduction -- ALSPAC Ethics and Law Committee: a new concept -- Preliminaries and pioneers: framing the questions -- Informal or casual: an unusual style -- Advisory to independent: a missed opportunity -- Bureaucratic battles: liaison with Local Research Ethics Committees -- Policy development: a case of case law -- Confidentiality and anonymity: a rod for their own backs -- Informed consent: too much information -- Child protection: an observational study? -- Disclosure of individual results: foreseen feedback and incidental findings -- Disclosure of individual results: participants' requests -- Participants' problems: people not policies -- External databases: anonymous linkage -- Beyond policy: a broad remit -- Retention of the Cohort: incentives or inducements -- Commercial collaborations: selling our souls -- Comprehensive oversight: undocumented and unacknowledged -- Influence beyond ALSPAC: extension of expertise -- Conclusions -- Postscript -- Notes -- References -- ALSPAC Steering Committee: founding members -- ALSPAC Ethics and Law Committee members: appointed 1990-2005 -- Letter to participants: further information concerning confidentiality -- Young Mothers paper by Elizabeth Mumford -- The Children of the Nineties study (ALSPAC) and collaboration with pharmaceutical companies -- Index



Sommario/riassunto

"Available Open Access under CC-BY-NC licence The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee.

This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston.

This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed."


The Avon Longitudinal Study of Parents and Children (ALSPAC), also known as Children of the 90s, is a world-leading birth cohort study that uniquely enrolled participants in utero and obtained genetic material from a geographic population. It instigated the innovative but controversial ALSPAC Ethics and Law Committee.

This book describes in detail the early work of this Committee, from establishing the core ethical principles necessary to protect participants, to the evolution of policies concerning confidentiality and anonymity, consent, non-intervention and disclosure of individual results, data access and security. Quotes from interviews with early members of the Committee reflect not only on its pioneering work but also on the unusual style and inspirational leadership of the first Chair, Professor Michael Furmston.

This will be of interest to those involved in other cohort studies in understanding the evolution of ethical policies as ALSPAC developed."