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Record Nr. |
UNINA9911142416903321 |
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Autore |
Chakravarti Upali |
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Titolo |
Disability and care work : state, society and invisible lives / / Upali Chakravarti |
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Pubbl/distr/stampa |
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Los Angeles, CA : , : SAGE Publications, Inc., , 2018 |
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ISBN |
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9789353287665 |
9353287669 |
9789352807758 |
9352807758 |
9789352807765 |
9352807766 |
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Edizione |
[1st edition.] |
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Descrizione fisica |
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1 online resource (220 pages) : illustrations |
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Disciplina |
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Soggetti |
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People with disabilities - Care |
People with disabilities - Social conditions |
Disabilities - Social aspects |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Cover -- Sage historypage -- Halftitle page -- Marketing page -- Fulltitle page -- Copyright page -- CONTENTS -- LIST OF ABBREVIATIONS -- PREFACE -- ACKNOWLEDGEMENTS -- Part 1 -- 1 Introduction -- 2 Framing Disability -- Part 2 -- 3 Making Sense of the Narratives I -- 4 Making Sense of the Narratives II -- 5 Making Sense of the Narratives III -- Part 3 -- 6 State, Society and Disability in India -- 7 The Welfare State as Paternalistic Caregiver -- 8 Conclusion -- APPENDIX -- BIBLIOGRAPHY -- ABOUT THE AUTHOR -- INDEX. |
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Sommario/riassunto |
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Disability and Care Work: State, Society and Invisible Lives explores the lived reality of children with disabilities and those involved in parenting and caring for them. It discusses the extent to which the needs of the disabled and their caregivers have been met by health and welfare initiatives, and finds substantial gaps. The book describes vividly how the families of children with disability negotiate the uncertain journey of identifying their child's disability, obtaining a diagnosis, accessing appropriate services and their ongoing efforts to reconcile with and |
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recognise their child's unique situation and mode of being. It critically examines the gendered dimensions involved in caregiving, the role of the state and civil society, and the legal and institutional frameworks in place. The book calls for inclusion of disability treatment at the primary care level, enhanced technology use for diagnosis and information, coordinated national level disability care policy formulation and organised action by the disabled and their caregivers to ensure their needs are addressed by the state and society. |
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