1.

Record Nr.

UNINA9910970499103321

Titolo

Effect of the HIPAA privacy rule on health research : proceedings of a workshop presented to the National Cancer Policy Forum / / National Cancer Policy Forum ; Roger Herdman and Harold Moses, rapporteurs ; Institute of Medicine of the National Academies

Pubbl/distr/stampa

Washington D.C., : National Academies Press, c2006

ISBN

9786610604494

9780309180696

0309180694

9781280604492

1280604492

9780309663878

0309663873

Edizione

[1st ed.]

Descrizione fisica

1 online resource (102 p.)

Altri autori (Persone)

HerdmanRoger

MosesHarold L

Disciplina

651.5

Soggetti

Health - Research - Access control

Medical records - Access control

Privacy

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references.

Nota di contenuto

""Front Matter""; ""Contents""; ""1 Introduction""; ""2 Prepared Presentations and Discussion""; ""Glossary""; ""Appendix Workshop Agenda""

Sommario/riassunto

The Health Insurance Portability and Accountability Act (HIPAA) of 1996 was enacted to improve the portability and continuity of health insurance; promote medical savings accounts; improve access to long-term care services and coverage; and simplify the administration of health insurance. HIPAA's Administrative Simplification provisions focus on facilitating the electronic exchange of information for financial and administrative functions related to patient care. However, the very advances that make it easier to transmit information also present



challenges to preserving the confidentiality of potentially sensitive personal information contained in medical records. In 2003, the President's Cancer Panel discovered HIPAA Privacy Rule slowed research on cancer survivors, as well as causing increased bureaucracy, informed consent problems, and complications for clinical trials. Effect of the HIPAA Privacy Rule on Health Research evaluates the impact of HIPAA provisions and provides guidance to legislators on amendments needed to make this law better serve the interests of cancer survivors and others.