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Record Nr. |
UNINA9910967525903321 |
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Titolo |
Ethical considerations for research on housing-related health hazards involving children / / Committee on Ethical Issues in Housing-Related Health Hazard Research Involving Children, Youth, and Families ; Bernard Lo and Mary Ellen O'Connell, editors |
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Pubbl/distr/stampa |
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Washington, DC, : National Academies Press, c2006 |
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ISBN |
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9786610262922 |
9780309164924 |
0309164923 |
9781280262920 |
1280262923 |
9780309653916 |
0309653916 |
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Edizione |
[1st ed.] |
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Descrizione fisica |
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Altri autori (Persone) |
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LoBernard |
O'ConnellMary Ellen <1960-> |
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Disciplina |
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Soggetti |
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Housing and health - Research - Moral and ethical aspects - United States |
Children - Housing - Research - Moral and ethical aspects - United States |
Poor children - Housing - Research - Moral and ethical aspects - United States |
Children - Research - Moral and ethical aspects - United States |
Pediatrics - Research - Moral and ethical aspects - United States |
Human experimentation in medicine - Moral and ethical aspects - United States |
Social sciences - Research - Moral and ethical aspects - United States |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Nota di bibliografia |
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Includes bibliographical references. |
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Nota di contenuto |
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Housing and health -- Grimes v. Kennedy Krieger Institute: revisiting the ethical issues -- Characteristics of housing health hazards research -- Community involvement -- Parental permission, consent, and payment -- Researchers' responsibilities -- Research oversight. |
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Sommario/riassunto |
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Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community. |
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