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Record Nr. |
UNINA9910965717903321 |
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Titolo |
Improving access to and confidentiality of research data : report of a workshop / / Christopher Mackie and Norman Bradburn, editors |
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Pubbl/distr/stampa |
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Washington, DC, : National Academy Press, c2000 |
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ISBN |
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0-309-17159-8 |
0-309-51381-2 |
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Edizione |
[1st ed.] |
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Descrizione fisica |
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Collana |
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Altri autori (Persone) |
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MackieChristopher D |
BradburnNorman M |
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Disciplina |
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Soggetti |
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Medical records |
Medical ethics |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Bibliographic Level Mode of Issuance: Monograph |
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Nota di bibliografia |
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Includes bibliographical references (p. 51-52). |
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Nota di contenuto |
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Front Matter -- Acknowledgments -- Contents -- Preface -- 1 Introduction -- 2 The Data Access, Confidentiality Tradeoff -- 3 Ethical and Legal Requirements Associated with Data Dissemination -- 4 Alternative Approaches for Limiting Disclosure Risks and Facilitating Data Access -- 5 Current Agency and Organization Practices -- References and Bibliography -- APPENDIX A Workshop Participants -- APPENDIX B Workshop Agenda. |
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Sommario/riassunto |
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Improving Access to and Confidentiality of Research Data summarizes a workshop convened by the Committee on National Statistics (CNSTAT) to promote discussion about methods for advancing the often conflicting goals of exploiting the research potential of microdata and maintaining acceptable levels of confidentiality. This report outlines essential themes of the access versus confidentiality debate that emerged during the workshop. Among these themes are the tradeoffs and tensions between the needs of researchers and other data users on the one hand and confidentiality requirements on the other; the relative advantages and costs of data perturbation techniques (applied to facilitate public release) versus restricted access as tools for improving security; and the need to quantify disclosure risks-both absolute and relative-created by researchers and research data, as well as by other |
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