|
|
|
|
|
|
|
|
1. |
Record Nr. |
UNINA9910963517103321 |
|
|
Autore |
Pemberton Stephen Gregory |
|
|
Titolo |
The bleeding disease : hemophilia and the unintended consequences of medical progress / / Stephen Pemberton |
|
|
|
|
|
|
|
Pubbl/distr/stampa |
|
|
2011 |
|
Baltimore : , : Johns Hopkins University Press, , 2011 |
|
|
|
|
|
|
|
|
|
ISBN |
|
|
|
|
|
|
|
|
Edizione |
[1st ed.] |
|
|
|
|
|
Descrizione fisica |
|
1 online resource (398 p.) |
|
|
|
|
|
|
Classificazione |
|
|
|
|
|
|
Disciplina |
|
|
|
|
|
|
Soggetti |
|
Hemophilia - Complications |
Hemophilia - United States - History |
|
|
|
|
|
|
|
|
Lingua di pubblicazione |
|
|
|
|
|
|
Formato |
Materiale a stampa |
|
|
|
|
|
Livello bibliografico |
Monografia |
|
|
|
|
|
Note generali |
|
Bibliographic Level Mode of Issuance: Monograph |
|
|
|
|
|
|
Nota di bibliografia |
|
Includes bibliographical references (pages 305-363) and index. |
|
|
|
|
|
|
Nota di contenuto |
|
Introduction : hemophilia as pathology of progress -- The emergence of the hemophilia concept -- The scientist, the bleeder, and the laboratory -- Vital factors in the making of a masculine world -- Normality within limits -- The hemophiliac's passport to freedom -- Autonomy and other imperatives of the health consumer -- The mismanagement of hemophilia and AIDS -- Conclusion : the governance of clinical progress in a global age. |
|
|
|
|
|
|
|
|
Sommario/riassunto |
|
Ironically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men. |
|
|
|
|
|
|
|