1.

Record Nr.

UNINA9910827325703321

Titolo

Hospice care for children / / editors, Ann Armstrong-Dailey, Sarah Zarbock Goltzer

Pubbl/distr/stampa

New York : , : Oxford University Press, , 1993

ISBN

1-280-44143-7

9786610441433

0-19-802372-3

1-4237-3755-5

Descrizione fisica

1 online resource (xvi, 294 pages) : illustrations

Altri autori (Persone)

Armstrong-DaileyAnn

ZarbockSarah F

Disciplina

362.1/756/083

Soggetti

Terminally ill children - Care

Hospice care

Terminally ill children - Family relationships

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

""Contents""; ""Contributors""; ""Introduction""; ""I: Issues in Clinical Management""; ""1. Children's Understanding of Death""; ""2. Pain and Symptom Control""; ""3. Psychosocial Aspects of Serious Illness in Childhood and Adolescence""; ""4. Neonatal Death""; ""5. Care for the Child with HIV Infection and AIDS""; ""II: Support Systems""; ""6. Family Dynamics""; ""7. Caring for Bereaved Parents""; ""8. After a Child Dies: Helping the Siblings""; ""9. Lessons in Grief: A Practical Look at School Programs""; ""10. Role of the Primary Physician""; ""11. Staff Support""

""12. The Volunteer Component"" ""III: Appendix""; ""An Early Model of Care""; ""A Home Care Program""; ""Palliative Care in an Inpatient Hospital Setting""; ""Children's Literature on Death""; ""Additional Resources""; ""Index""

Sommario/riassunto

Children with life-threatening and terminal illnesses - and their families - require a unique kind of care to meet a wide variety of needs. This book provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource,



with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment: organizational structure, clinical issues, the complementary roles of medical professionals and volunteers, the particular circumstances of neonatal and AIDS-related deaths, pain and symptom control, and bereavement support. It explains the developmental stages of children's understanding of death and offers useful advice about school programs and the helpful role of children's literature. Special consideration is given to the need to provide support to hospice staff as well as to grieving parents and surviving siblings. The book is intended for all those who participate in the hospice care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents and community service volunteers