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Record Nr. |
UNINA9910820784303321 |
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Autore |
Silverman Chloe |
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Titolo |
Understanding autism : parents, doctors, and the history of a disorder / / Chloe Silverman |
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Pubbl/distr/stampa |
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Princeton, NJ ; ; Woodstock, : Princeton University Press, 2011 |
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ISBN |
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1-283-29070-7 |
9786613290700 |
1-4008-4039-2 |
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Edizione |
[Course Book] |
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Descrizione fisica |
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1 online resource (353 p.) |
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Disciplina |
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Soggetti |
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Autism in children |
Parents of autistic children |
Autistic children - Family relationships |
Autism in children - Treatment |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Description based upon print version of record. |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Front matter -- Contents -- Acknowledgments -- Introduction. Love as an Analytic Tool -- Part One -- 1. Research Programs, "Autistic Disturbances," and Human Difference -- 2. Love Is Not Enough: Bruno Bettelheim, Infantile Autism, and Psychoanalytic Childhoods -- 3. Expert Amateurs: Raising and Treating Children with Autism -- Interlude. Parents Speak: The Art of Love and the Ethics of Care -- Part two -- 4. Brains, Pedigrees, and Promises: Lessons from the Politics of Autism Genetics -- 5. Desperate and Rational: Parents and Professionals in Autism Research -- 6. Pandora's Box: Immunizations, Parental Obligations, and Toxic Facts -- Conclusion. What the World Needs Now: Learning About and Acting on Autism Research -- Notes -- Bibliography -- Index |
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Sommario/riassunto |
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Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the role of emotion--specifically, of parental love--in the intense and |
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passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism has been constituted and stabilized through vital efforts of schools, gene banks, professional associations, government committees, parent networks, and treatment conferences. She examines the love and labor of parents, who play a role in developing--in conjunction with medical experts--new forms of treatment and therapy for their children. While biomedical knowledge is dispersed through an emotionally neutral, technical language that separates experts from laypeople, parental advocacy and activism call these distinctions into question. Silverman reveals how parental care has been a constant driver in the volatile field of autism research and treatment, and has served as an inspiration for scientific change. Recognizing the importance of parental knowledge and observations in treating autism, this book reveals that effective responses to the disorder demonstrate the mutual interdependence of love and science. |
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