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Record Nr. |
UNINA9910814949803321 |
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Autore |
Redman Barbara Klug |
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Titolo |
Advanced practice nursing ethics in chronic disease self-management [[electronic resource] /] / Barbara Klug Redman |
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Pubbl/distr/stampa |
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New York, : Springer, 2012 |
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ISBN |
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1-78539-302-2 |
0-8261-9573-3 |
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Descrizione fisica |
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Disciplina |
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Soggetti |
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Patient education |
Self-care, Health |
Chronic diseases - Treatment |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Description based upon print version of record. |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Cover Page; Advanced Practice Nursing Ethics in Chronic Disease Self-Management; Contents; Abbreviations; Preface; Chapter 1: A Suggested Ethical Framework for Patient Self-Management of Chronic Disease; The Capability Approach; Goals for PSM of Chronic Disease; Concerns for Equity and Protection of Patient Safety; An Ethically Appropriate Model for PSM of Chronic Disease; Reflections on Capability Framework for PSM of Chronic Disease; Summary; Study Questions and Answers; Chapter 2: State of the Science and Best Self-Management Practices by Disease; Arthritis and Musculoskeletal Diseases |
Asthma and Chronic Respiratory DiseasesCancer; Cardiovascular Diseases; Diabetes; Summary; Study Questions and Answers; Chapter 3: Best Practices in Patient Self-Management Preparation and Support; Chronic Care Model; Structured Programs Including Peer Models; Provider-Patient Interaction; Family and Community Support; An Alternative Nursing Model; Summary; Study Questions and Answers; Chapter 4: Changing the Patient's Self; Education as Initiation into Socially Constructed Norms; Beliefs; Motivation; Identity and How to Balance Cultural and Medical Validity; Importance of Dignity |
Moral Conflicts of Patients and FamiliesSummary; Study Questions and Answers; Chapter 5: Morally Valid Measurement Model for Patient Self-Management Decisions; The Decisions: Patient Selection, Safety, Shared |
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decision Making, and Goals Met; Monitoring for Harms as Well as for Benefits in PSM Measurement; Mandatory Range of Instruments Psychometrically Validated for SM; Summary; Study Questions and Answers; Chapter 6: Technologies in Patient Self-Management; Information Health Technologies and PSM Support Systems; Home, Mobile, and Personal Technologies; Ethics in Technology Assessment |
Social NetworkingPSM as Social Innovation with Embedded Technologies; Summary; Study Questions and Answers; Chapter 7: Paradigmatic Examples of Patient Self-Management Ethics; Shifting Boundaries from Provider Management to PSM (And Back); Contribution of PSM to Decrease of Health Disparities and Poverty; Persons with Debilitating Symptoms but without Medical Diagnosis and/or Treatment Plan; Patients with Comorbidities; Mental Health Recovery Movement; Common Chronic Conditions for Which No Stable PSM Model Exists; Summary; Study Questions and Answers |
Chapter 8: Implementing an Ethically Appropriate Model for Patient Self-ManagementUniversal Access to Safe and Effective PSM Education and Support; Guaranteed Threshold of Capabilities Development; Tools for PSM and Decision Support; Necessary Health System Changes; PSM of Chronic Disease in Low-And Middle-Income Countries; What Does All This Have to Do With Bioethics?; Summary; Key Ethical Questions and Answers; Appendix A: Measurement Instruments; Measuring Pain Self-Efficacy (Miles et al., 2011); Partners in Health Scale (PIH); Instrument Description, Administration and Scoring Guidelines |
Psychometric Properties |
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Sommario/riassunto |
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The trend toward patient self-management (PSM) of chronic disease is accelerating at a rapid pace along with the evolution of home-based or mobile technologies to support this care. Yet the development of self-management practice standards and advanced practice nursing support has been haphazard. This book fills a glaring void by addressing, against a backdrop of current best practices in PSM, such questions as: What are appropriate standards of safety in PSM? How can we be assured those standards are met? How does one reach a good prognosis about whether or not patients will be able to practi |
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