1.

Record Nr.

UNINA9910812110303321

Autore

Fullwiley Duana

Titolo

The enculturated gene : sickle cell health politics and biological difference in West Africa / / Duana Fullwiley

Pubbl/distr/stampa

Princeton, N.J., : Princeton University Press, 2011

ISBN

1-4008-4041-4

9786613290939

1-283-29093-6

Edizione

[Course Book]

Descrizione fisica

1 online resource (727 p.)

Disciplina

362.196/15271009663

Soggetti

Sickle cell anemia - Social aspects - Senegal

Sickle cell anemia - Genetic aspects

Sickle cell anemia - Patients - Services for - Senegal

Genetic disorders - Social aspects - Senegal

Kinship - Health aspects - Senegal

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

Introduction: the powers of association -- Healthy sicklers with "mild" disease: local illness affects and population-level effects -- The biosocial politics of plants and people -- Attitudes of care -- Localized biologies: mapping race and sickle cell difference in French West Africa -- Ordering illness: heterozygous "trait" suffering in the land of the mild disease -- The work of patient advocacy -- Conclusion: economic and health futures amid hope and despair.

Sommario/riassunto

In the 1980's, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell ""mild"" in a social setting where public health priorities and economic austerity programs have forced people to