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Record Nr. |
UNINA9910797970403321 |
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Titolo |
Genetic transparency? : ethical and social implications of next generation human genomics and genetic medicine / / edited by Malte Dreyer, Jeanette Erdmann, Christoph Rehmann-Sutter |
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Pubbl/distr/stampa |
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Leiden, Netherlands ; ; Boston, Massachusetts : , : Brill-Rodopi, , 2016 |
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©2016 |
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ISBN |
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Descrizione fisica |
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1 online resource (292 p.) |
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Collana |
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Life Sciences, Ethics and Democracy, , 2211-4416 ; ; Volume 2 |
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Disciplina |
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Soggetti |
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Genomics - Moral and ethical aspects |
Medical genetics - Moral and ethical aspects |
Human genetics |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Preliminary Material / Malte Dreyer , Jeanette Erdmann and Christoph Rehmann-Sutter -- Introduction / Christoph Rehmann-Sutter , Malte Dreyer and Jeanette Erdmann -- The Idea of ‘Genes’ and Their ‘Transparency’ / Christoph Rehmann-Sutter and Malte Dreyer -- Making Genomes Visible / Benedikt Reiz , Jeanette Erdmann and Christoph Rehmann-Sutter -- Who is the Subject of Genetic Responsibility? / Angeliki Kerasiou , Cathy Herbrand and Malte Dreyer -- Personal Genomics: Transparent to Whom? / Teresa Finlay , Shannon Gibson , Lene Koch and Sara Toccheti -- Genetic Transparency versus Genetic Privacy – The Complex Ethics of Genetic Testing in Humans / Kirsten Brukamp , Gabrielle M. Christenhusz and Caroline Fündling -- Understanding the Complexity of Regulation in an Evolving Health Technology Landscape / Andrei Famenka , Shannon Gibson and Fruzsina Molnár-Gábor -- Genetic Transparency – Transparency of Communication / Gabrielle M. Christenhusz , Lorraine Cowley , Tim Ohnhäuser and Vasilija Rolfes -- About the Authors / Malte Dreyer , Jeanette Erdmann and Christoph Rehmann-Sutter -- Index / Malte Dreyer , Jeanette Erdmann and Christoph Rehmann-Sutter. |
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Sommario/riassunto |
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Genetic Transparency? tackles the question of who has, or should have |
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access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then – the authors of this volume claim – the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti |
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