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1. |
Record Nr. |
UNINA9910797175703321 |
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Titolo |
Beyond myalgic encephalomyelitis/chronic fatigue syndrome : redefining an illness / / Institute of Medicine of the National Academies ; cover design by LeAnn Locher |
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Pubbl/distr/stampa |
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Washington, District of Columbia : , : The National Academies Press, , 2015 |
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©2015 |
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ISBN |
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0-309-31692-8 |
0-309-31690-1 |
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Descrizione fisica |
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1 online resource (304 p.) |
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Disciplina |
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Soggetti |
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Myalgic encephalomyelitis - Diagnosis |
Chronic fatigue syndrome - Diagnosis |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Description based upon print version of record. |
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Nota di bibliografia |
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Includes bibliographical references at the end of each chapters. |
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Nota di contenuto |
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""Front Matter""; ""Reviewers""; ""Contents""; ""Boxes, Figures, and Tables""; ""Preface""; ""Acronyms and Abbreviations""; ""Summary""; ""1 Introduction""; ""2 Background""; ""3 Current Case Definitions and Diagnostic Criteria, Terminology, and Symptom Constructs and Clusters""; ""4 Review of the Evidence on Major ME/CFS Symptoms and Manifestations""; ""5 Review of the Evidence on Other ME/CFS Symptoms and Manifestations""; ""6 Pediatric ME/CFS""; ""7 Recommendations""; ""8 Dissemination Strategy""; ""Appendix A: Public Session Agendas""; ""Appendix B: GRADE Grid Template"" |
""Appendix C: Disability in ME/CFS""""Appendix D: Questionnaires and Tools That May Be Useful for Assessing ME/CFS Symptoms""; ""Appendix E: Biographical Sketches of Committee Members, Consultants, and Staff"" |
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Sommario/riassunto |
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"Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients |
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often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment."-- |
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2. |
Record Nr. |
UNINA9910955042603321 |
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Autore |
Horrocks Tony |
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Titolo |
CiviCRM cookbook : master this web-based constituent relationship management software for nonprofit and civic sector organizations / / Tony Horrocks |
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Pubbl/distr/stampa |
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Birmingham, : Packt Pub., 2013 |
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ISBN |
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Edizione |
[1st ed.] |
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Descrizione fisica |
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1 online resource (236 p.) |
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Disciplina |
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Soggetti |
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Customer relations - Management - Data processing |
Open source software |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Description based upon print version of record. |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Cover; Copyright; Credits; Foreword; About the Author; About the Reviewers; www.PacktPub.com; Table of Contents; Preface; Chapter 1: Setting Up CiviCRM; Introduction; Setting up a CiviCRM theme in Drupal; Setting up cron using cPanel; Adding items to the CiviCRM navigation menu; Refreshing the dashboard; Changing display preferences; Replacing words; Setting up geocoding; Autofiling e-mails; Creating new activities; Adding custom fields; Using Scheduled Reminders for activities; Using CiviCase to create an HR system; Installing languages and localizing CiviCRM |
Chapter 2: Organizing Data EfficientlyIntroduction; Adding contact types; Adding a time-limited relationship; Using tag sets to quickly organize data; Using tags and groups to segment data; Changing option lists; Creating and updating a smart group; Using Google Refine to prepare data; Importing into CiviCRM using an import script; Using external identifier deduping rules to update contacts; Using Google Refine to create a unique ID; Importing relationship data; Exporting related data; Batch updating using profiles; Chapter 3: Using the Power of Profiles; Introduction; Speeding up data entry |
Using URLs to change profile displaysCreating a membership directory; Controlling the search result columns using profiles; Using the Profile Pages and Listings setting to improve usability; Setting up reCAPTCHA |
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for user profiles; Chapter 4: Controlling Permissions; Introduction; Integrating profiles into Drupal user accounts; Restricting access to custom fields; Using CRM profile permissions correctly; Creating permissions for administrators; Managing event registrations using CiviCRM Access Control Lists; Chapter 5: Managing Communications; Introduction |
Setting up a bounced e-mail account using GmailCreating mail templates for CiviMail; Creating mail templates for CiviMail in Drupal; Using tokens in templates; Creating custom date tokens; Scheduling CiviMail; Throttling mailings to comply with hosting restrictions; Creating newsletter subscription services using profiles; Creating newsletter subscriptions using URLs; Creating a standalone newsletter subscription form; Getting a CiviMail report; Mailing attachments in e-mail and CiviMail; Allowing users to update information without logging in; Chapter 6: Searching and Reporting; Introduction |
Creating a membership mailing list using Advanced SearchUsing Search Builder to create a smart group; Adding the external identifier to full-text searching; Adding custom fields to a report; Adding an extra display field to a report template; Creating a dynamic relationship report using Drupal Views; Chapter 7: Integrating CiviCRM with Drupal; Introduction; Enabling Drupal Views; Creating user accounts from contacts in CiviCRM; Mapping contact data; Using Webform CiviCRM to update relationship data; Creating user accounts on the fly with CiviCRM entities |
Combining CiviCRM contacts with Drupal content using CiviCRM entities |
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Sommario/riassunto |
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This book is written in cookbook style with practical, comprehensive recipes expained with the aid of the necessary screenshots.If you have basic CiviCRM skills and want to further enhance your CiviCRM skills, this book is for you. |
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