1.

Record Nr.

UNINA9910791241503321

Autore

Shaw Alison <1957->

Titolo

Negotiating risk [[electronic resource] ] : British Pakistani experiences of genetics / / Alison Shaw

Pubbl/distr/stampa

New York, : Berghahn Books, 2009

ISBN

1-282-62748-1

9786612627484

1-84545-887-7

Descrizione fisica

1 online resource (294 p.)

Disciplina

616.042

Soggetti

Medical genetics - Great Britain

Consanguinity - Great Britain

Pakistanis - Great Britain

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references (p. 253-274) and index.

Nota di contenuto

Medical and public perceptions of consanguineous marriage and genetic risk -- Close kin marriages : some anthropological theory and European history -- British Pakistani cousin marriages : balancing marital risks -- Medical surveillance and diagnostic uncertainty -- Responding to reproductive risk -- Foretelling and managing infant death -- Genetic screening and the extended family -- Genetic risk in context.

Sommario/riassunto

Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a 'genetic diagnosis'. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated 'risk' of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural ster