1.

Record Nr.

UNINA9910788315903321

Autore

Miles Ann (Ann M.)

Titolo

Living with lupus [[electronic resource] ] : women and chronic illness in Ecuador / / by Ann Miles

Pubbl/distr/stampa

Austin, : University of Texas Press, 2013

ISBN

0-292-74466-8

Edizione

[1st ed.]

Descrizione fisica

1 online resource (205 p.)

Collana

Louann Atkins Temple women & culture series ; ; book thirty

Disciplina

362.1967/72009866

Soggetti

Systemic lupus erythematosus - Ecuador

Women - Diseases - Ecuador

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

""Contents""; ""Acknowledgments""; ""1. Introduction""; ""2. Cuenca, Lupus, and Chronic Illness""; ""3. Health Care in Ecuador""; ""4. Liminality""; ""5. Loss""; ""6. Suffering""; ""7. Transformation""; ""8. Living with Lupus""; ""Notes""; ""References""; ""Index""

Sommario/riassunto

Once associated only with the wealthy and privileged in Latin America, lifelong illnesses are now emerging among a wider cross section of the population as an unfortunate consequence of growing urbanization and increased life expectancy. One of these diseases is the chronic autoimmune disorder lupus erythematosus. Difficult to diagnose and harder still to effectively manage, lupus challenges the very foundations of women’s lives, their real and imagined futures, and their carefully constructed gendered identities. While the illness is validated by medical science, it is poorly understood by women, their families, and their communities, which creates multiple tensions as women attempt to make sense of an unpredictable, expensive, and culturally suspect medically managed illness. Living with Lupus vividly chronicles the struggles of Ecuadorian women as they come to terms with the experience of debilitating chronic illness. Drawing on years of ethnographic research, Ann Miles sensitively portrays the experiences and stories of Ecuadorian women who suffer with the intractable and stigmatizing disease. She uses in-depth case histories, rich in ethnographic detail, to explore not only how chronic illness can tear at the seams of women’s precarious lives, but also how meanings are



reconfigured when a biomedical illness category moves across a cultural landscape. One of the few books that deals with the meanings and experiences of chronic illness in the developing world, Living with Lupus contributes to our understanding of a significant global health transition.