1.

Record Nr.

UNINA9910785432603321

Autore

Mattingly Cheryl

Titolo

The Paradox of Hope : Journeys through a Clinical Borderland / / Cheryl Mattingly

Pubbl/distr/stampa

Berkeley, CA : , : University of California Press, , [2010]

©2010

ISBN

1-283-27749-2

9786613277497

0-520-94823-8

Descrizione fisica

1 online resource (286 p.)

Disciplina

362.198 92008996073

Soggetti

African Americans

African Americans - Medical care

Chronically ill children - Medical care - United States

Medical anthropology - Medical care - United States

Poor - United States

Social medicine - United States

Medical personnel and patient - United States

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di contenuto

Front matter -- Contents -- Prologue -- Acknowledgments -- 1. The Lobby -- 2. Narrative Matters -- 3. Border Trouble -- 4. Widening the Gap: The Creation of a Conflict Drama -- 5. Plotting Hope -- 6. Daydreaming: Captain Hook Gets Speech Therapy -- 7. Fleeting Hope -- 8. Narrative Phenomenology and the Practice of Hope -- Notes -- References -- Index

Sommario/riassunto

Grounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she



explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances.