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Record Nr. |
UNINA9910783203903321 |
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Titolo |
Populations and Genetics : Legal and Socio-Ethical Perspectives / / edited by Bartha Maria Knoppers |
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Pubbl/distr/stampa |
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Leiden; ; Boston : , : Brill | Nijhoff, , 2003 |
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ISBN |
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1-280-46532-8 |
9786610465323 |
1-4237-2168-3 |
90-474-0293-6 |
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Descrizione fisica |
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1 online resource (669 p.) |
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Disciplina |
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Soggetti |
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Biological Specimen Banks - ethics |
Biological Specimen Banks - legislation & jurisprudence |
Databases, Genetic - ethics |
Databases, Genetic - legislation & jurisprudence |
DNA fingerprinting - Law and legislation |
Genetics, Population - ethics |
Genetics, Population - legislation & jurisprudence |
Human population genetics - Moral and ethical aspects |
Medical genetics - Law and legislation |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Proceedings of the 3rd International DNA Sampling Conference held in Montreal, Québec, 2002. |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Acknowledgements; In memoriam; Prologue; Contents; Section 1 - Of Biobanks and Databases; Section 2 - Of Populations and Communities; Section 3 - Of Commerce, Patents and Benefit-Sharing; Section 4 - Of Information and Discrimination; Epilogue - Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations |
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Sommario/riassunto |
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Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving populations, are current legal and ethical approaches sufficient? This |
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book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over. |
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