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Record Nr. |
UNINA9910780133403321 |
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Titolo |
When children die [[electronic resource] ] : improving palliative and end-of-life care for children and their families / / Committee on Palliative and End-of-Life Care for Children and Their Families, Board on Health Sciences Policy ; Marilyn J. Field and Richard E. Behrman, editors |
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Pubbl/distr/stampa |
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Washington, D.C., : National Academy Press, c2003 |
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ISBN |
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0-309-16947-X |
1-280-18370-5 |
9786610183708 |
0-309-50215-2 |
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Descrizione fisica |
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1 online resource (712 p.) |
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Altri autori (Persone) |
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FieldMarilyn J (Marilyn Jane) |
BehrmanRichard E. <1931-> |
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Disciplina |
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Soggetti |
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Terminally ill children - Care |
Terminally ill children - Family relationships |
Palliative treatment |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Description based upon print version of record. |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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""Front Matter""; ""Contents""; ""Preface""; ""Acknowledgments""; ""Reviewers""; ""Summary""; ""Introduction""; ""Patterns of Childhood Death in America""; ""Pathways to a Child�s Death""; ""Communication, Goal Setting, and Care Planning""; ""Care and Caring from Diagnosis Through Death and Bereavement""; ""Providing, Organizing, and Improving Care""; ""Financing of Palliative and End-of-Life Care for Children and Their Families""; ""Ethical and Legal Issues""; ""Educating Health Care Professionals""; ""Directions for Research""; ""References""; ""Appendix A Study Origins and Activities"" |
""Appendix B Prognostication Scores""""Appendix C Assessing Health-Related Quality of Life in End-of-Life Care for Children and Adolescents""; ""Appendix D Cultural Dimensions of Care at Life�s End for Children and Their Families""; ""Appendix E Bereavement Experiences after the Death of a Child""; ""Appendix F End-of-Life Care |
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