1.

Record Nr.

UNINA9910633918103321

Titolo

Guide for advanced nursing care of the adult with congenital heart disease / / edited by Serena Francesca Flocco [and three others]

Pubbl/distr/stampa

Cham, Switzerland : , : Springer, , [2022]

©2022

ISBN

3-031-07598-6

Descrizione fisica

1 online resource (325 pages)

Disciplina

616.12

Soggetti

Cardiology

Congenital heart disease in children

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

Intro -- Foreword -- Contents -- Part I: Epidemiology, Anatomy and Pathophysiology -- 1: Incidence of Congenital Heart Disease and Relevance in Adulthood -- 1.1  Epidemiology of Congenital Heart Disease -- References -- 2: Cardiac Defects -- 2.1  Atrial Septal Defect -- 2.1.1  Clinical Presentation -- 2.1.2  Management -- 2.1.3  Complications -- 2.2  Ventricular Septal Defect -- 2.2.1  Clinical Presentation -- 2.2.2  Management -- 2.3  Atrioventricular Septal Defects -- 2.3.1  Clinical Presentation -- 2.3.2  Management -- 2.4  Left Ventricle Outflow Tract Obstructions -- 2.4.1  Clinical Presentation -- 2.4.2  Management -- 2.5  Coarctation of the Aorta -- 2.5.1  Clinical Presentation -- 2.5.2  Management -- 2.5.3  Complications -- 2.6  Patent Ductus Arteriosus -- 2.7  Clinical Presentation -- 2.7.1  Management -- 2.7.2  Complications -- 2.8  Transposition of the Great Arteries (D-TGA) -- 2.8.1  Clinical Presentations -- 2.8.2  Management -- 2.8.3  Complications -- 2.9  Tetralogy of Fallot and Right Ventricular Outflow Tract Disorders -- 2.9.1  Clinical Presentation -- 2.9.2  Management -- 2.9.2.1  Palliative Surgery -- 2.9.2.2  Corrective Surgery -- 2.9.3  Complications -- 2.10  Residual Right Ventricular Outflow Tract Obstruction -- 2.11  Endocarditis -- 2.11.1  Sudden Cardiac Death -- 2.12  Pulmonary Atresia -- 2.12.1  Clinical Presentation -- 2.12.2  Management -- 2.12.3  Complications -- 2.13  Single Ventricle and Fontan Circulation -- 2.13.1  Clinical Presentation



-- 2.13.2  Surgical Procedure -- 2.13.3  Complications -- References -- Part II: Transition from Pediatric to Adult Care -- 3: Transitional Care for Young People -- 3.1  Background -- 3.2  What Is Transition? -- 3.3  Process and Stage of Transition -- 3.4  Patient Education and Empowerment -- 3.5  Pregnancy, Contraception and Family Planning.

3.6  Exercise and Participation in Sports -- 3.7  Preventing the Loss to Follow-up -- 3.8  Transition Information Day -- 3.9  Charities Involvement -- 3.10  Psychological Aspect of Transition and Challenges -- 3.11  Established Relationships with Paediatric Teams/Involving Parents and Carers -- 3.12  Role of Family/Carers in the Transition -- 3.13  Role of the ACHD CNS in Supporting Young Adults with CHD -- 3.14  Executive Summary -- References -- 4: Advancing High-Value Transitional Care: The Central Role of Nursing and Its Leadership -- 4.1  Introduction -- 4.2  Focus on Holistic Care in Nursing -- 4.3  Holistic Needs of Transitional Care -- 4.4  Nursing Leadership in Transitional Care -- 4.5  Conclusions -- References -- 5: Building a Transition Program -- 5.1  Factors That Impact the Structure of a Transitional Program -- 5.2  Models of Transitional Programs -- 5.2.1  Methods of Transitional Education Delivery -- 5.2.2  Timing of Transitional Care and Transfer of Care -- 5.3  Structure of a Transition Clinic -- 5.4  Domains of Assessment -- 5.4.1  Transition Readiness -- 5.4.1.1  Mental Health -- 5.4.1.2  Health Literacy -- 5.4.1.3  Educational Preferences -- 5.4.1.4  Family and Social Support -- 5.4.1.5  Health-Related Beliefs -- 5.4.2  Health Knowledge -- 5.4.3  Self-Care Assessment -- 5.4.4  Care Preferences -- 5.4.5  Future-Oriented Assessment -- 5.4.6  Diagnosis and Planning -- 5.4.7  Intervention Planning -- 5.4.8  Transitional APRN Interventions -- 5.4.9  Implementation -- 5.4.10  Evaluation -- 5.4.11  Future Nursing Research Opportunities -- 5.5  Conclusion -- References -- Part III: The Role of the Advance Nurse Practitioner in the Care of ACHD Patients in Different Care Setting -- 6: Nursing Care in the Outpatient and Hospital Setting -- 6.1  Specialist Role -- 6.2  Outpatient Setting -- 6.3  Specific Lesions.

6.3.1  Valve and Outflow Tract Lesions -- 6.3.1.1  Left Heart -- 6.3.1.2  Right Heart -- 6.3.2  Septal Defects -- 6.3.3  Eisenmenger Syndrome -- 6.3.4  Aortic Lesions -- 6.3.5  Transposition Complexes -- 6.3.6  Tetralogy of Fallot/Pulmonary Atresia with VSD and MAPCA -- 6.3.7  Univentricular Circulation/Fontan -- 6.4  Inpatient Setting -- 6.4.1  Pre-assessment -- 6.4.2  Admission -- 6.4.3  Assessment -- 6.4.4  Oxygen -- 6.4.5  Medical Admission -- 6.4.6  Surgical Intervention -- 6.4.7  Catheter Intervention -- 6.4.8  Psychological Support -- 6.4.9  Discharge -- References -- 7: Nursing Care in the Cath Lab -- 7.1  Cath Lab -- 7.1.1  Indication to Heart Catheterization -- 7.2  Role of a Cath Lab Nurse -- 7.3  Operative Room Characteristics -- 7.4  Room Preparation -- 7.5  Procedure's Management -- 7.5.1  Patient Preparation -- 7.5.2  Sterile Trolley Preparation (Fig. 7.3) -- 7.5.3  Cath Lab Tools -- 7.5.4  Interventional Procedures -- 7.5.5  Nurses During the Procedure -- 7.5.6  Post-procedural Monitoring -- 7.6  Tools Management -- References -- 8: Nursing Care in the Critical Setting -- 8.1  Pediatric vs. Adult ICU -- 8.2  Hemodynamic Monitoring -- 8.2.1  Non-invasive Monitoring -- 8.2.2  Invasive Monitoring -- 8.2.2.1  Types of Invasive Monitors -- 8.3  Fluid Resuscitation -- 8.3.1  Special Considerations -- 8.4  Ventilation and Sedation -- 8.5  Arrhythmia Management -- 8.6  Anticoagulation -- 8.6.1  Endocarditis -- 8.6.2  Pain Management -- 8.6.3  Cardiac Rehabilitation -- 8.6.4  Nutrition -- References -- Part IV: Advanced Heart Failure in ACHD -- 9: Management of Acute Heart Failure -- 9.1  Introduction -- 9.2  



Epidemiology of Heart Failure in CHD -- 9.3  Pathophysiology -- 9.3.1  General Concepts and Circulatory Models -- 9.3.2  Phenotypes of HF in CHD -- 9.3.3  Main Differences of HF in Acquired Vs Congenital Disease -- 9.4  Management.

9.4.1  General Principles -- 9.4.2  Practical Management Multistep Algorithm of Acute HF in CHD -- 9.5  Key Learning Points -- References -- 10: Mechanical Circulatory Support Strategies -- 10.1  Introduction and Definition -- 10.2  Indications and Classification -- 10.3  MCS Modalities -- 10.3.1  ECMO -- 10.3.2  VAD -- 10.3.3  TAH -- 10.3.4  Impella and Tandem Heart -- 10.4  MCS Reports and Outcomes in ACHD Patients with Biventricular Physiology -- 10.5  MCS in IN ACHD Patients with Single-Ventricle Physiology -- References -- 11: Heart Transplantation: The Challenging Journey of an ACHD -- 11.1  Congenital Heart Disease and Heart Failure -- 11.2  Cardiac Surgery for End-Stage Heart Failure in ACHD -- 11.3  Heart Transplant and Listing -- 11.4  Transplant Eligibility and Listing -- 11.4.1  When Is a Heart Transplant Performed? -- 11.4.2  Crossmatch -- 11.5  Heart Transplant Surgery: Nursing Management -- 11.5.1  Preoperative Phase -- 11.5.2  Heart Transplant -- 11.6  Postoperative Phase in the Intensive Care Unit -- 11.6.1  Vasoactive Medications -- 11.6.2  Nitric Oxide -- 11.6.3  Extracorporeal Membrane Oxygenation -- 11.7  Postoperative Phase in Transplant Unit Ward -- 11.8  Complications during Hospital Stay -- 11.9  Clinical and Home Rehabilitation -- 11.9.1  Posttransplantation Management -- 11.9.2  Follow-Up -- References -- Part V: Adult Congenital Heart Disease and Pregnancy -- 12: Congenital Heart Disease During Pregnancy -- 12.1  Introduction -- 12.2  Hemodynamic Changes During Pregnancy and Delivery -- 12.3  Assessment of Maternal and Fetal Risk and Prediction of Outcome -- 12.3.1  Pulmonary Hypertension -- 12.3.2  Fontan Circulation (Total Cavopulmonary Connection) -- 12.3.3  Hereditary Aortopathies -- 12.3.4  Congenital Heart Diseases with Systemic Right Ventricle -- 12.3.5  Cyanotic Congenital Heart Diseases.

12.4  The "Pregnancy Heart Team" -- 12.5  Medications -- 12.6  Cardiovascular Complications Pregnancy-Related -- 12.7  Delivery Planning -- 12.8  Follow-Up after Delivery (Postpartum and Long-Term Follow-Up) -- References -- 13: Contraception, Family Planning, and Pregnancy Management: The Nurse Specialist Role -- 13.1  Family Planning and Contraception Counseling -- 13.1.1  Contraception Counseling -- 13.1.2  Barriers to Contraceptive Use -- 13.1.3  Contraceptive Options -- 13.2  Tier 1: Most Effective (1% or Less Chance of Failure with Typical Use) -- 13.2.1  Intrauterine Devices (IUDs) -- 13.2.2  Progestin Subdermal Implant -- 13.2.3  Female and Male Sterilization -- 13.3  Tier 2: Less Effective (6-12% Chance of Failure per Year with Typical Use) -- 13.3.1  Progestin-Only Injectables -- 13.3.2  Progestin-Only Pills -- 13.3.3  Combined Hormonal Contraceptives -- 13.3.4  Emergency Contraception -- 13.4  Tier 3: Least Effective (18-28% Failure Rate per Year with Typical Use) -- 13.4.1  Barrier Methods, Spermicide, Diaphragm, Sponge, Fertility Awareness, and Withdrawal -- 13.5  Prepregnancy Counseling -- 13.5.1  Fetal Risk -- 13.6  Genetic Counseling -- 13.7  The Clinical Assessment -- 13.7.1  Medical and Cardiac History -- 13.7.2  Physical Assessment -- 13.7.3  Normal Signs and Symptoms in Pregnancy -- 13.8  Diagnostic Testing -- 13.9  Pregnancy Management: The Nurse Specialist Role -- 13.9.1  Antepartum Care -- 13.9.2  Delivery Plan -- References -- Part VI: Physical Activity and Sport -- 14: Rehabilitation's Point Break: Changing for Improving -- 14.1  Introduction -- 14.2  Phases 1 and 2 -- 14.3  Exercise Prescription -- 14.4  Phases 3 and 4 -- References -- 15: Promotion of Daily Physical Activity and Exercise



for Adults with Congenital Heart Disease -- 15.1  Background -- 15.2  Physical Aspect -- 15.3  Social Aspect.

15.4  Psychological Aspect/Quality of Life (QoL).