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1. |
Record Nr. |
UNINA9910141151303321 |
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Titolo |
The ethical and legal regulation of human tissue and biobank research in Europe : proceedings of the Tiss.EU project / / Katharina Beier, Silvia Schnorrer, Nils Hoppe, Christian Lenk (eds.) |
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Pubbl/distr/stampa |
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Göttingen : , : Universitätsverlag Göttingen, , 2011 |
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©2011 |
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Descrizione fisica |
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1 online resource (183 pages) : illustrations |
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Collana |
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Open Access e-Books |
Knowledge Unlatched |
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Disciplina |
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Soggetti |
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Biobanks - Government policy - Europe |
Biobanks - Moral and ethical aspects - Europe |
Donation of organs, tissues, etc - Law and legislation - Europe |
Medical ethics |
Preservation of organs, tissues, etc - Law and legislation - Europe |
Procurement of organs, tissues, etc - Law and legislation - Europe |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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"Proceedings of the Tiss. EU Project" |
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Nota di bibliografia |
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Includes bibliographical references. |
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Nota di contenuto |
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Introduction -- Ethical and legal aspects of research with human tissue in Europe (First International Conference, Göttingen) / Katharina Beier -- Rights and entitlements in human tissue and cells (First International Workshop, Hannover) / Katharina Beier -- Anonymisation and pseudonymisation as means of privacy protection (Second International Workshop, Budapest) / Petra Bárd and Judit Sándor -- Biobanks for research purposes (Third International Workshop, Paris) / Christine Noiville, Florence Bellivier and Virginie Commin -- Privacy, confidentiality and personality rights in biobanking and genetic research with human tissue (Second International Conference, Göttingen) / Katharina Beier -- Procurement, storage and transfer of tissues and cells for non-clinical purposes in a legal and ethical perspective (Fourth International Workshop, Padova) / Alessandra Bernardi, Luciana Caenazzo and Renzo Pegoraro -- Rights and entitlements in human tissue and cells: the BENELUX countries (Fifth |
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International Workshop, Leiden) / Jasper A. Bovenberg -- Anonymisation and pseudonymisation as means of privacy protection (Sixth International Workshop, Stockholm) / Claudio Tamburrini -- The transfer, storage and procurement of human cells and tissues (Seventh International Workshop, Dublin) / Elizabeth Yuko and Bert Gordijn -- Biobanking: ethics, governance and regulation (Eighth International Workshop, Birmingham) / Sean Cordell -- Procurement, storage and transfer of tissues and cells for non-clinical research purposes (Ninth International Workshop, Vilnius) / Vilius Dranseika, Eugenijus Gefenas -- The future of biobanking in Europe: searching for answers to the ethical and legal challenges of human tissue research (Final International Conference, Göttingen) / Katharina Beier, Silvia Schnorrer -- Conclusions / Katharina Beier. |
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Sommario/riassunto |
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Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss. EU project ("Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union - an Evidence-Based Impact Analysis") to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project's results. |
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2. |
Record Nr. |
UNINA9910553068903321 |
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Autore |
Pilling Merrick Daniel |
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Titolo |
Queer and Trans Madness : Struggles for Social Justice / / by Merrick Daniel Pilling |
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Pubbl/distr/stampa |
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Cham : , : Springer International Publishing : , : Imprint : Palgrave Macmillan, , 2022 |
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ISBN |
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9783030904135 |
9783030904128 |
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Edizione |
[1st ed. 2022.] |
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Descrizione fisica |
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1 online resource (224 pages) |
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Disciplina |
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Soggetti |
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Critical psychology |
Queer theory |
Sex (Psychology) |
Health |
Sex |
Social medicine |
Medical sciences |
Critical Psychology |
Queer Studies |
Psychology of Gender and Sexuality |
Gender and Health |
Health, Medicine and Society |
Health Sciences |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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1. Introduction: Queer and Trans Madness: Struggles for Social Justice -- 2. Reclaiming the Lunatic Fringe: Toward a Mad-Queer-Trans Lens -- 3. Expanding the Struggle Against Queer and Trans Pathologization: Challenging Biomedicalism -- 4. The Biomedical Model in Practice I: Encounters with Mental Health Care Practitioners -- 5. The Biomedical Model in Practice II: Inpatient Chart Documentation on Trans and Non-Binary People -- 6. Creating Social Change: The Emancipatory Promise |
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of Queer and Trans Madness. |
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Sommario/riassunto |
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Queer and Trans Madness: Struggles for Social Justice urges those invested in social justice for 2SLGBTQ people to interrogate the biomedical model of mental illness beyond the diagnoses that specifically target gender and sexual dissidence. In this first comprehensive application of Mad Studies to queer and trans experiences of mental distress, Pilling advances a broad critique of the biomedical model of mental illness as it pertains to 2SLGBTQ people, arguing that Mad Studies is especially amenable to making ense of queer and trans madness. Based on empirical data from two qualitative research studies, this book includes analyses of inpatient chart documentation from a psychiatric hospital and interviews with those who have experienced distress. Using an intersectional lens, Pilling critically examines what constitutes mental health treatment and the impacts of medical strategies on mad queer and trans people. Ultimately, Queer and Trans Madness: Struggles for Social Justice explores the emancipatory promise of queer and trans madness, advocating for more resources to respond to crisis and distress in ways that are non-coercive, non-carceral, and honour autonomy as well as interdependence within 2SLGBTQ communities. Merrick Daniel Pilling is Assistant Professor of Women’s and Gender Studies in the School of Social Work at the University of Windsor in Windsor, Ontario, Canada. He is co-editor of Interrogating Psychiatric Narratives of Madness: Documented Lives. |
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