| |
|
|
|
|
|
|
|
|
1. |
Record Nr. |
UNINA9910523003603321 |
|
|
Titolo |
Born well : prenatal genetics and the future of having children / / Megan A. Allyse, Marsha Michie, editors |
|
|
|
|
|
|
|
Pubbl/distr/stampa |
|
|
Cham, Switzerland : , : Springer, , [2022] |
|
©2022 |
|
|
|
|
|
|
|
|
|
ISBN |
|
|
|
|
|
|
Descrizione fisica |
|
1 online resource (145 pages) |
|
|
|
|
|
|
Collana |
|
International library of bioethics ; ; Volume 88 |
|
|
|
|
|
|
Disciplina |
|
|
|
|
|
|
Soggetti |
|
Genetic engineering - Moral and ethical aspects |
|
|
|
|
|
|
Lingua di pubblicazione |
|
|
|
|
|
|
Formato |
Materiale a stampa |
|
|
|
|
|
Livello bibliografico |
Monografia |
|
|
|
|
|
Nota di bibliografia |
|
Includes bibliographical references and index. |
|
|
|
|
|
|
Nota di contenuto |
|
Intro -- Introduction -- Contents -- Part I Clinical Background -- 1 Women, Children, Families and the Translation of Genomics in Reproductive Medicine -- 1.1 Introduction -- 1.2 Genetic Testing in the Reproductive Context -- 1.3 Translating Genomics from the Bench to the Bedside -- 1.4 Conclusion -- References -- 2 Practicing Prenatal Medicine in a Genomic Future: How the Practice of Pediatrics May (Or May Not) Change with the Introduction of Widespread Prenatal Sequencing -- 2.1 Introduction -- 2.2 Drivers of Genomic Testing Implementation -- 2.3 Historical Review of Impact of Prenatal Genetic Testing -- 2.4 Effects of Next-Generation Genomic Technologies on Prenatal Diagnosis -- 2.5 Carrier Screening -- 2.6 Regional and Global Differences in Contextual Factors -- 2.7 Conclusion -- References -- Part II Voices of Disability -- 3 Eugenics or Not, Prenatal Genetic Testing's Common Issues Need to Be Addressed -- 3.1 Introduction -- 3.2 The Expressivist Critique of Prenatal Genetic Testing -- 3.3 Distinctions with the Eugenics Movement -- 3.4 Eugenic Distinctions and Modern Administration of Prenatal Genetic Testing -- 3.5 Eugenics Concerns and Common Ground -- 3.6 Conclusion -- 4 The Impact of Prenatal Screening on Disability Communities and the Meaning of Disability -- 4.1 Introduction -- 4.2 Attitudes of Disabled People to the Rise of Prenatal Screening -- 4.3 Attitudes of Families -- 4.4 Changing Responses to Disability as a Consequence of Screening -- 4.5 Conclusion -- |
|
|
|
|
|
|
|
|
|
|
References -- 5 An Expressivist Disability Critique of the Expansion of Prenatal Genomics -- 5.1 Introduction -- 5.2 Concerns About Consequences -- 5.2.1 Pathologization and Unintended Consequences -- 5.3 Expressing a Message: Claims and Examples -- 5.3.1 "Official" Messages -- 5.3.2 Statements Made by Professionals -- 5.3.3 The Message Received by People with Disabilities. |
5.4 The Social Phenomenon of Prenatal Testing -- 5.5 Meaning and Medicalization -- 5.6 The Meaning of the Social Phenomenon of Prenatal Testing -- 5.6.1 Examples of Medicalization in Action -- 5.6.2 The Logic of Medicalization -- 5.7 Autonomy as an Outcome Rather than Termination -- 5.8 Conclusion -- References -- Part III Voices of Social Sciences and the Humanities -- 6 The Hypothetical Healthy Newborn -- 6.1 The Arc of Knowing -- 6.2 The Ethical Paradox of a Patient within a Patient -- 6.3 The Hypothetical Healthy Newborn as Normate Template -- 6.4 Two Ways of Knowing -- 6.5 Vitality -- 7 The Good and the Goal of Pre-conception and Pre-natal Genetic Testing from a Catholic Perspective -- 7.1 The Catholic Church's Historical Approaches to Health Care and Eugenics -- 7.2 Moral Approaches to Genetic Technologies -- 7.3 Conclusion -- 8 Pathways to Affluence: Socioeconomic Incentives in Prenatal Testing and Abortion -- 8.1 Introduction -- 8.2 Responsible Motherhood and Its Obligations -- 8.3 Indirect Costs -- 8.4 Public Views on Prenatal Testing and the Cost of Disability -- 8.5 Pathways to Affluence -- 8.6 Profiting From the Pathway -- 8.7 Beyond Down Syndrome -- References -- Part IV The Future? -- 9 An Intelligent Parents Guide to Prenatal Testing: Having a Well-Born Child Without Genomic Selection -- 9.1 Too Much Information, Too Many Choices -- 9.2 Who's Harmed by Not Selecting Against Disease and Disability? Is Anything Wrong with Not Selecting? -- 9.3 Are There Moral Reasons Against Prenatal Selectivity? -- 9.4 Who Bears the Cost of the Child You're Bearing? -- 9.5 Actionable Results: Therapeutic Testing -- 9.6 Conclusion -- Resources for Further Reading -- Index. |
|
|
|
|
|
| |