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Record Nr. |
UNINA9910484951403321 |
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Titolo |
Shared struggles : stories from parents and pediatricians caring for children with serious illnesses / / edited by Ann F. Schrooten, Barry P. Markovitz |
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Pubbl/distr/stampa |
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Cham, Switzerland : , : Springer, , [2021] |
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©2021 |
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ISBN |
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Descrizione fisica |
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1 online resource (251 pages) |
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Disciplina |
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Soggetti |
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Physician and patient |
Relacions metge-pacient |
Infants malalts |
Llibres electrònics |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Nota di contenuto |
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Intro -- Foreword -- Acknowledgments -- Parent Contributors -- Physician Contributors -- Contents -- About the Editors -- Introduction -- Part I: Compassion -- 1: What Matters at the End -- Parent Commentary -- Physician Commentary -- 2: I Did Not Have to Fix It -- Parent Commentary -- Physician Commentary -- 3: No Wrong Decisions -- Parent Commentary -- Physician Commentary -- 4: Reuniting Families -- Parent Commentary -- Physician Commentary -- 5: Leading with Compassion -- Parent Commentary -- Physician Commentary -- 6: Minute by Minute, Step by Step -- Parent Commentary -- Physician Commentary -- 7: Seek Permission First -- Parent Commentary -- Physician Commentary -- 8: A Sacred Relationship -- Parent Commentary -- Physician Commentary -- 9: Kids Like These -- Parent Commentary -- Physician Commentary -- 10: A Smile Worth Saving -- Parent Commentary -- Physician Commentary -- Part II: Trust -- 11: Team Harlie -- Parent Commentary -- Physician Commentary -- 12: Best Laid Plans -- Parent Commentary -- Physician Commentary -- 13: If We Are Paying Attention -- Parent Commentary -- Physician Commentary -- 14: Full Disclosure -- Parent |
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Commentary -- Physician Commentary -- 15: The Photograph -- Parent Commentary -- Physician Commentary -- 16: Learning Together -- Parent Commentary -- Physician Commentary -- 17: Altered Path -- Parent Commentary -- Physician Commentary -- 18: The Befores and the Afters -- Parent Commentary -- Physician Commentary -- 19: Not Everyone Is Born a Superhero -- Parent Commentary -- Physician Commentary -- 20: Beyond the Numbers -- Parent Commentary -- Physician Commentary -- 21: Shared Experience -- Parent Commentary -- Physician Commentary -- 22: Tying the Thread into a Bond -- Parent Commentary -- Physician Commentary -- Part III: Communication -- 23: A Voice That Doesn't Use Words -- Parent Commentary. |
Physician Commentary -- 24: Brave the Difficult Conversation -- Parent Commentary -- Physician Commentary -- 25: A Roadmap -- Parent Commentary -- Physician Commentary -- 26: Teamwork -- Parent Commentary -- Physician Commentary -- 27: Relearning to Listen -- Parent Commentary -- Physician Commentary -- 28: Words Matter -- Parent Commentary -- Physician Commentary -- 29: Trust Their Voice -- Parent Commentary -- Physician Commentary -- 30: Knowing Your Family -- Parent Commentary -- Physician Commentary -- 31: Advocacy Is Not Anger -- Parent Commentary -- Physician Commentary -- 32: Where Is the Doctor? -- Parent Commentary -- Physician Commentary -- 33: Failure to Communicate -- Parent Commentary -- Physician Commentary -- 34: When a Patient and Family Forever Change Your World -- Parent Commentary -- Physician Commentary -- 35: Respect: A Two-Way Street -- Parent Commentary -- Physician Commentary -- Part IV: Hope -- 36: Persistence of Hope: A Story in Two Acts -- Act 1 -- Act 2 -- Parent Commentary -- Physician Commentary -- 37: Can I Offer You Advice? -- Parent Commentary -- Physician Commentary -- 38: The Life of the Party -- Parent Commentary -- Physician Commentary -- 39: Every Single Second Worth It -- Parent Commentary -- Physician Commentary -- 40: Partners in Hope -- Parent Commentary -- Physician Commentary -- 41: Answers for Rosie -- Parent Commentary -- Physician Commentary -- 42: We Treat Souls, Not Just Bodies -- Parent Commentary -- Physician Commentary -- 43: Never Give Up -- Parent Commentary -- Physician Commentary -- 44: The Sliver of Sky -- Parent Commentary -- Physician Commentary -- 45: The Many Voices of Hope -- Parent Commentary -- Physician Commentary -- 46: Mothers Club -- Parent Commentary -- Physician Commentary -- Glossary -- Index. |
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