1.

Record Nr.

UNINA9910465665703321

Titolo

Challenges and opportunities in using residual newborn screening samples for translational research [[electronic resource] ] : workshop summary / / Steve Olson and Adam C. Berger, rapporteurs ; Roundtable on Translating Genomic-Based Research for Health, Board on Health Sciences Policy, Institute of Medicine of the National Academies

Pubbl/distr/stampa

Washington, D.C., : National Academies Press, 2010

ISBN

1-282-91713-7

9786612917134

0-309-15955-5

Descrizione fisica

1 online resource (85 p.)

Altri autori (Persone)

OlsonSteve <1956->

BergerAdam C

Disciplina

618.9

Soggetti

Genetic disorders - Diagnosis

Newborn infants - Diseases - Diagnosis

Electronic books.

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references.

Nota di contenuto

""Front Matter""; ""Reviewers""; ""Acknowledgments""; ""Contents""; ""Abbreviations and Acronyms""; ""1 Introduction""; ""2 Newborn Screening as a Public Health Program""; ""3 Uses of Residual Newborn Screening Samples in Research""; ""4 Concerns About the Use of Residual Newborn Screening Samples""; ""5 Review and Consent in the Use of Residual Newborn Screening Samples""; ""6 Parental and Public Education""; ""7 Workshop Overview and Wrap-Up""; ""References""; ""Appendix A: Workshop Agenda""; ""Appendix B: Speaker Biographical Sketches""