1.

Record Nr.

UNINA9910463969603321

Titolo

Dying and disabled children : dealing with loss and grief / / Harold M. Dick. [et al.], editors

Pubbl/distr/stampa

New York : , : Routledge, , 2013

ISBN

1-315-80416-6

1-317-77371-3

1-317-77372-1

Descrizione fisica

1 online resource (166 p.)

Altri autori (Persone)

DickHarold M

Disciplina

155.9/37

Soggetti

Children with disabilities - Psychology

Terminally ill children - Psychology

Sick children - Family relationships

Children and death

Electronic books.

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

First published 1988 by The Haworth Press.

Nota di bibliografia

Includes bibliographical references.

Nota di contenuto

Cover; Half Title; Title Page; Copyright Page; Table of Contents; About the Editors; I. Loss of A Body Part; Traumatic Amputation in Childhood: Functional and Psychosocial Aspects; Functional Aspects; Psychosocial Aspects; Summary; Emotional Reactions to the Loss or a Body Part; Reaction or Children and Adolescents to Amputation; Impact; Retreat; Acknowledgment; Reconstruction; Amputation and the Reconstruction or Congenital Lesions; II. Loss of A Perfect Child; Loss or the ""Perfect"" Child and Ethical Decision Making: Miguel's Story; III. Chronic Loss and Disabilily; Seeking Significance

Finding SignificancePediatric Orthopedics: Dealing with Loss and Chronic Sorrow; Jerry; Peter; Review of the Literature; Application to Clinical Practice; The Impact of the Disabled Child on the Family; Some Aspects of Psychosocial Sequelae to Treatment of Scoliosis in Adolescent Girls; Responses to Diagnosis; Treatment; IV. Dealing With Life·Threatening Disease; Care of the Dying Adolescent and the Bereaved Family; Stresses Faced by the Family; Communication; Adolescents' Needs; Family, School, and Community; Teen Support



Programs; Parent Support Groups

Adolescents in the Final Stages of LifeDeath and Bereavement; Depression, Denial, and Withdrawal in Mothers of Seriously Ill Children and Adolescents; Sample and Observation of Behavior; Therapeutic Intervention; Suffering by Children: Some Observations of Brave Children and Their Families at a Children's Hospital; The Needs of Sarcoma Patients from Diagnosis Through Follow-Up; Treatment of Fractures in Children with Malignancies; Advantage of Early Spinal Stabilization and Fusion in Patients with Duchenne Muscular Dystrophy; Methods; Results; Discussion; Psychosocial Aspects of Chemotherapy

The Ultimate Loss: The Dying ChildV. Bereavement; Communication Among Children, Parents, and Funeral Directors; Talking to Children About Death; Children's Reactions to Death; Children and Funerals; Parental Grief Over the Death of a Child; Couples Mourn as Individuals; Mourning Process; History and the Road to Recovery

Sommario/riassunto

In this sensitive and compassionate look at terminally ill and disabled children, professionals from the medical community examine the stresses faced by their parents and siblings. They address the crucial element of communication--within a family and between health care providers and family members--in dealing with a child's serious illness. Ethical decision making, learning to recognize the child's suffering, and talking to children about death are honestly and clearly discussed. Experts offer direct interventions to help family members through the grieving process once a child has died.