1.

Record Nr.

UNINA9910461302003321

Autore

Arribas-Ayllon Michael

Titolo

Genetic testing : accounts of autonomy, responsibility and blame / / Michael Arribas-Ayllon, Srikant Sarangi and Angus Clarke

Pubbl/distr/stampa

Abingdon, Oxon : , : Routledge, , 2011

ISBN

1-283-45813-6

9786613458131

1-134-02629-3

0-203-89138-4

Descrizione fisica

1 online resource (219 p.)

Collana

Genetics and society

Altri autori (Persone)

ClarkeAngus <1954->

SarangiSrikant <1956->

Disciplina

174.2/96042

Soggetti

Genetic screening - Moral and ethical aspects

Medical genetics

Electronic books.

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

Front Cover; Genetic Testing; Copyright Page; Contents; Acknowledgements; List of abbreviations; 1. Introduction; 2. Genetic testing: technology in context; 3. Neo-liberalism and the new genetics; 4. Rhetorical discourse analysis; 5. Personal genomics and the media; 6. Family accounts of genetic responsibility; 7. Accounts of genetic testing in the clinic; 8. Professional accounts of ethical challenges in the prenatalgenetics clinic; 9. Conclusion; Appendix: transcription conventions; Notes; Bibliography; Index

Sommario/riassunto

"Advances in molecular genetics have led to the increasing availability of genetic testing for a variety of inherited disorders. While this new knowledge presents many obvious health benefits to prospective individuals and their families it also raises complex ethical and moral dilemmas for families as well as genetic professionals. This book explores the ways in which genetic testing generates not only probabilities of potential futures, but also enjoys new forms of social, individual and professional responsibility. Concerns about confidentiality and informed consent involving children, the assessment



of competence and maturity, the ability to engage in shared decision-making through acts of disclosure and choice, are just some of the issues that are examined in detail"--Provided by publisher.