Understanding autism [[electronic resource] ] : parents, doctors, and the history of a disorder / / Chloe Silverman

• Record Nr.: UNINA9910461414903321
• Autore: Silverman Chloe
• Pubbl/distr/stampa: Princeton, NJ ; ; Woodstock, : Princeton University Press, 2011
• ISBN: 1-283-29070-7; 9786613290700; 1-4008-4039-2
• Edizione: [Course Book]
• Descrizione fisica: 1 online resource (353 p.)
• Disciplina: 618.9285882
• Soggetti: Autism in children; Parents of autistic children; Autistic children - Family relationships; Autism in children - Treatment; Electronic books.
• Lingua di pubblicazione: Inglese
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Note generali: Description based upon print version of record.
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: Frontmatter -- Contents -- Acknowledgments -- Introduction. Love as an Analytic Tool -- Part One -- 1. Research Programs, "Autistic Disturbances," and Human Difference -- 2. Love Is Not Enough: Bruno Bettelheim, Infantile Autism, and Psychoanalytic Childhoods -- 3. Expert Amateurs: Raising and Treating Children with Autism -- Interlude. Parents Speak: The Art of Love and the Ethics of Care -- Part two -- 4. Brains, Pedigrees, and Promises: Lessons from the Politics of Autism Genetics -- 5. Desperate and Rational: Parents and Professionals in Autism Research -- 6. Pandora's Box: Immunizations, Parental Obligations, and Toxic Facts -- Conclusion. What the World Needs Now: Learning About and Acting on Autism Research -- Notes -- Bibliography -- Index
• Sommario/riassunto: Autism has attracted a great deal of attention in recent years, thanks to dramatically increasing rates of diagnosis, extensive organizational mobilization, journalistic coverage, biomedical research, and clinical innovation. Understanding Autism, a social history of the expanding diagnostic category of this contested illness, takes a close look at the ; role of emotion--specifically, of parental love--in the intense and passionate work of biomedical communities investigating autism. Chloe Silverman tracks developments in autism theory and practice over the past half-century and shows how an understanding of autism has been constituted and stabilized through vital efforts of schools, gene banks, professional associations, government committees, parent networks, and treatment conferences. She examines the love and labor of parents, who play a role in developing--in conjunction with medical experts--new forms of treatment and therapy for their children. While biomedical knowledge is dispersed through an emotionally neutral, technical language that separates experts from laypeople, parental advocacy and activism call these distinctions into question. Silverman reveals how parental care has been a constant driver in the volatile field of autism research and treatment, and has served as an inspiration for scientific change. Recognizing the importance of parental knowledge and observations in treating autism, this book reveals that effective responses to the disorder demonstrate the mutual interdependence of love and science.

Collecting, managing, and assessing data using sample surveys / / Peter Stopher [[electronic resource]]

• Record Nr.: UNINA9910457284403321
• Autore: Stopher Peter R.
• Pubbl/distr/stampa: Cambridge : , : Cambridge University Press, , 2012
• ISBN: 1-107-21856-X; 1-139-20943-4; 1-280-56868-2; 1-139-22226-0; 9786613598288; 0-511-97789-1; 1-139-22397-6; 1-139-21745-3; 1-139-21437-3; 1-139-22054-3
• Descrizione fisica: 1 online resource (xxvi, 534 pages) : digital, PDF file(s)
• Disciplina: 001.422
• Soggetti: Surveys - Design; Surveys - Methodology; Sampling (Statistics)
• Lingua di pubblicazione: Inglese
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Note generali: Title from publisher's bibliographic system (viewed on 05 Oct 2015).
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: Cover; Collecting, Managing, and Assessing Data Using Sample Surveys; Title; Copyright; Dedication; Contents; Figures; Tables; Acknowledgements; 1: Introduction; 1.1 The purpose of this book; 1.2 Scope of the book; 1.3 Survey statistics; 2: Basic statistics and probability; 2.1 Some definitions in statistics; 2.1.1 Censuses and surveys; 2.2 Describing data; 2.2.1 Types of scales; Nominal scales; Ordinal scales; Interval scales; Ratio scale; Measurement scales; 2.2.2 Data presentation: graphics; 2.2.3 Data presentation: non-graphical; Measures of magnitude; Frequencies and proportions; Central measures of dataExamples; Measures of dispersion; The normal distribution; Some useful properties of variances and standard deviations; Examples; 3: Basic issues in surveys; 3.1 Need for survey methods; 3.1.1 A definition of sampling methodology; 3.2 Surveys and censuses; 3.2.1 Costs; 3.2.2 Time; 3.3 Representativeness; 3.3.1 Randomness; 3.3.2 Probability sampling; 3.4 Errors and bias; 3.4.1 Sample design and sampling error; 3.4.2 Bias; 3.4.3 Avoiding bias; 3.5 Some important definitions; 4: Ethics of surveys of human populations; 4.1 Why ethics?; 4.2 Codes of ethics or practice; 4.3 Potential threats to confidentiality4.3.1 Retaining detail and confidentiality; 4.4 Informed consent; 4.5 Conclusions; 5: Designing a survey; 5.1 Components of survey design; 5.2 Defining the survey purpose; 5.2.1 Components of survey purpose; Data needs; Comparability or innovation; Defining data needs; Data needs in human subject surveys; Survey timing; Geographic bounds for the survey; 5.3 Trade-offs in survey design; 6: Methods for conducting surveys of human populations; 6.1 Overview; 6.2 Face-to-face interviews; 6.3 Postal surveys; 6.4 Telephone surveys; 6.5 Internet surveys; 6.6 Compound survey methods6.6.1 Pre-recruitment contact; 6.6.2 Recruitment; Random digit dialling; 6.6.3 Survey delivery; 6.6.4 Data collection; 6.6.5 An example; 6.7 Mixed-mode surveys; 6.7.1 Increasing response and reducing bias; 6.8 Observational surveys; 7: Focus groups; 7.1 Introduction; 7.2 Definition of a focus group; 7.2.1 The size and number of focus groups; 7.2.2 How a focus group functions; 7.2.3 Analysing the focus group discussions; 7.2.4 Some disadvantages of focus groups; 7.3 Using focus groups to design a survey; 7.4 Using focus groups to evaluate a survey; 7.5 Summary; 8: Design of survey instruments8.1 Scope of this chapter; 8.2 Question type; 8.2.1 Classification and behaviour questions; Mitigating threatening questions; 8.2.2 Memory or recall error; 8.3 Question format; 8.3.1 Open questions; 8.3.2 Field-coded questions; 8.3.3 Closed questions; 8.4 Physical layout of the survey instrument; 8.4.1 Introduction; 8.4.2 Question ordering; Opening questions; Body of the survey; The end of the questionnaire; 8.4.3 Some general issues on question layout; Overall format; Appearance of the survey; Front cover; Spatial layout; Choice of typeface; Use of colour and graphics
• Sommario/riassunto: Collecting, Managing, and Assessing Data Using Sample Surveys provides a thorough, step-by-step guide to the design and implementation of surveys. Beginning with a primer on basic statistics, the first half of the book takes readers on a comprehensive tour through the basics of survey design. Topics covered include the ethics ; of surveys, the design of survey procedures, the design of the survey instrument, how to write questions and how to draw representative samples. Having shown readers how to design surveys, the second half of the book discusses a number of issues surrounding their implementation, including repetitive surveys, the economics of surveys, web-based surveys, coding and data entry, data expansion and weighting, the issue of non-response, and the documenting and archiving of survey data. The book is an excellent introduction to the use of surveys for graduate students as well as a useful reference work for scholars and professionals.