Living with learning disabilities, dying with cancer [[electronic resource] ] : thirteen personal stories / / Irene Tuffrey-Wijne; foreword by Sheila Rollins

• Record Nr.: UNINA9910456323703321
• Autore: Tuffrey-Wijne Irene <1963->
• Pubbl/distr/stampa: London ; ; Philadelphia, : Jessica Kingsley, 2010
• ISBN: 1-282-55492-1; 9786612554926; 0-85700-200-7
• Descrizione fisica: 1 online resource (274 p.)
• Disciplina: 362.196/9940092; B
• Soggetti: Cancer - Patients - Great Britain; Learning disabled - Great Britain; Electronic books.
• Lingua di pubblicazione: Inglese
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Note generali: Description based upon print version of record.
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: FRONT COVER; Living with Learning Disabilities, Dying with Cancer:Thirteen Personal Stories; Contents; ACKNOWLEDGEMENTS; Foreword by Professor Sheila Hollins; PREFACE; Chapter 1:Three Stories; John Davies; Vincent Sweeney; Nick Ballard; Chapter 2: Diagnosis and Treatment; Lily Lamb; The cancer diagnosis; Cancer treatments; Summary; Chapter 3:Truth-telling and Understanding; Lily Lamb's understanding of cancer; Were people told the truth?; Understanding cancer and dying; Sally Burnett: 'Don't tell her'; Breaking bad news; Summary; Chapter 4:Family and Friends; Lily Lamb and her family; The importance of familiesPete Carpenter and his sister Daphne; Friends; Summary; Chapter 5:Unprepared Services, Inexperienced Carers; Lily Lamb and her carers; Pete Carpenter and his carers; Services were not prepared for death; The emotional impact of caring; Health care professionals; Summary; Chapter 6:Dependent Lives; The story of Lily Lamb's life; Deprivation and dependence; Forced jollity; The importance of listening; Summary; Chapter 7:Resilience; Richard Horwood: 'Don't ever give up'; The features of resilience; Summary; ; Chapter 8:Dying and Beyond; Lily Lamb's death; Dying; Funerals; Grieving and rememberingSummary; Chapter 9:Learning Lessons; What did people want and need?; Conclusion; APPENDIX 1: THE PEOPLE IN THIS BOOK; APPENDIX 2: METHODS; ENDNOTES; RESOURCES; REFERENCES; INDEX
• Sommario/riassunto: This book is a powerful and moving account of the experiences of 13 people with learning disabilities who were living with cancer. The author gained a unique understanding of what it is like for individuals with learning disabilities to live with deteriorating health and how this may impact upon their families, friends and carers.