1.

Record Nr.

UNINA9910453879403321

Autore

Epstein Steven

Titolo

Inclusion [[electronic resource] ] : the politics of difference in medical research / / Steven Epstein

Pubbl/distr/stampa

Chicago, : University of Chicago Press, 2007

ISBN

1-281-95679-1

9786611956790

0-226-21311-0

Descrizione fisica

1 online resource (427 p.)

Collana

Chicago studies in practices of meaning

Disciplina

610.72

Soggetti

Medicine - Research - Social aspects - United States

Human experimentation in medicine - Social aspects - United States

Clinical trials - Social aspects - United States

Minorities - Medical care - United States

Health and race - United States

Social medicine - United States

Electronic books.

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Description based upon print version of record.

Nota di bibliografia

Includes bibliographical references (p. [311]-394) and index.

Nota di contenuto

How to study a biopolitical paradigm -- Histories of the human subject -- The rise of resistance : framing the critique of the standard human -- The path to reform : aligning categories, targeting the state -- Opposition to reform : controversy, closure, and boundary work -- Formalizing the new regime -- From the standard human to niche standardization -- Counts and consequences : monitoring compliance -- The science of recruitmentology and the politics of trust -- To profile or not to profile : what difference does race make? -- Sex differences and the new politics of women's health -- Whither the paradigm?

Sommario/riassunto

With Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions. Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men—



and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clin