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Record Nr. |
UNINA9910452757303321 |
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Autore |
Adams Rachel <1968-> |
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Titolo |
Raising Henry : a memoir of motherhood, disability, & discovery / / Rachel Adams |
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Pubbl/distr/stampa |
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New Haven : , : Yale University Press, , [2013] |
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ISBN |
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Descrizione fisica |
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1 online resource (352 p.) |
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Disciplina |
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Soggetti |
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Down syndrome - Patients - United States |
Developmentally disabled children - United States |
Parents of developmentally disabled children - United States |
Mothers and sons - United States |
Electronic books. |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Note generali |
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Description based upon print version of record. |
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Nota di bibliografia |
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Includes bibliographical references. |
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Nota di contenuto |
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Front matter -- Contents -- Acknowledgments -- Prelude -- Arrival -- My Favorite Freak -- The Phantom Nephew -- Learning Curve -- Christmas -- The Feeding Tube -- The Nursing Circle -- What Peggy Did -- Aiming High Enough -- Early Intervention -- Choices -- Visiting The Front Lines -- Cake -- Brothers -- Inclusion -- A Simple Place -- Finding A Voice -- The Girl Down The Street -- Surprised By Disability -- Transition -- Always Something -- Epilogue -- Selected Bibliography |
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Sommario/riassunto |
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Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with |
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disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget. |
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