Genetic databases : socio-ethical issues in the collection and use of DNA / / edited by Richard Tutton and Oonagh Corrigan

• Record Nr.: UNINA9910451441403321
• Pubbl/distr/stampa: London ; ; New York : , : Routledge, , 2004
• ISBN: 0-203-35506-7; 1-134-37335-X; 1-280-05823-4; 9786610058235; 0-203-57792-2
• Descrizione fisica: 1 online resource (222 p.)
• Altri autori (Persone): TuttonRichard <1972->; CorriganOonagh <1957->
• Disciplina: 303.48/3
• Soggetti: DNA; Nucleotide sequence; Amino acid sequence; Genetics - Data processing; Databases - Citizen participation; Bioinformatics; Medical ethics; Electronic books.
• Lingua di pubblicazione: Inglese
• Formato: Materiale a stampa
• Livello bibliografico: Monografia
• Note generali: Description based upon print version of record.
• Nota di bibliografia: Includes bibliographical references and index.
• Nota di contenuto: Introduction : public participation in genetic databases / Richard Tutton and Oonagh Corrigan -- Person, property and gift : exploring languages of tissue donation to biomedical research / Richard Tutton -- Blood donation for genetic research : what can we learn from donors' narratives? / Helen Busby -- Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project / Erica Haimes and Michael Whong-Barr -- Informed consent : the contradictory ethical safeguards in pharmacogenetics / Oonagh Corrigan -- Ambiguous gifts : public anxiety, informed consent and biobanks / Klaus Hoeyer -- Abandoning informed consent ; : the case of genetic research in population collections / Jane Kaye -- Children's participation in genetic epidemiology : consent and control / Emma Williamson ... [et al.] -- 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections? / Sue Weldon -- Tissue collection and the pharmaceutical industry : investigating corporate biobanks / Graham Lewis.
• Sommario/riassunto: Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercia