1.

Record Nr.

UNINA9910449892803321

Titolo

Populations and Genetics : Legal and Socio-Ethical Perspectives / / edited by Bartha Maria Knoppers

Pubbl/distr/stampa

Leiden; ; Boston : , : Brill | Nijhoff, , 2003

ISBN

1-280-46532-8

9786610465323

1-4237-2168-3

90-474-0293-6

Descrizione fisica

1 online resource (669 p.)

Disciplina

344.04196

Soggetti

Biological Specimen Banks - ethics

Biological Specimen Banks - legislation & jurisprudence

Databases, Genetic - ethics

Databases, Genetic - legislation & jurisprudence

DNA fingerprinting - Law and legislation

Genetics, Population - ethics

Genetics, Population - legislation & jurisprudence

Human population genetics - Moral and ethical aspects

Medical genetics - Law and legislation

Electronic books.

Lingua di pubblicazione

Inglese

Formato

Materiale a stampa

Livello bibliografico

Monografia

Note generali

Proceedings of the 3rd International DNA Sampling Conference held in Montreal, Québec, 2002.

Nota di bibliografia

Includes bibliographical references and index.

Nota di contenuto

Acknowledgements; In memoriam; Prologue; Contents; Section 1 - Of Biobanks and Databases; Section 2 - Of Populations and Communities; Section 3 - Of Commerce, Patents and Benefit-Sharing; Section 4 - Of Information and Discrimination; Epilogue - Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations

Sommario/riassunto

Genetic research and testing is not limited to individuals and their families. Increasingly, there is focus on communities and even whole populations. This raises legal and socio-ethical and issues that have not been addressed. In this age of international biobanking involving



populations, are current legal and ethical approaches sufficient? This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns. Possible commercialization, patents, benefit sharing, discrimination, and the role of patient organizations and of developing countries are also discussed. New perspectives and models are provided. The book concludes with a Statement of Principles on the Ethical Conduct of Human Genetic Research Involving Populations. Policymakers, academics, legislators and researchers will find this book to be current and controversial. The human genome may be mapped but the legal and socio-ethical debate is far from over.