This book, authored by Anne Chateau and Odile Piquerez, delves into the lives of adults living with Angelman Syndrome, a rare genetic disorder first described in 1965 and later confirmed in 1987. The authors draw on personal experiences and testimonies from other parents to shed light on the challenges and unique personalities of those affected by this condition. The book aims to raise awareness and understanding of the syndrome, highlighting issues such as epilepsy, motor problems, and mental and language deficits. It also explores the societal challenges and the need for inclusive practices. The intended audience includes parents, caregivers, medical professionals, and anyone interested in genetic disorders and disability advocacy. |