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Record Nr. |
UNINA9910155129003321 |
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Titolo |
The experience of hearing loss : journey through aural rehabilitation / / edited by Vinaya Manchaiah and Berth Danermark |
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Pubbl/distr/stampa |
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Milton Park, Abingdon, Oxon ; ; New York, N.Y. : , : Routledge, , 2017 |
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ISBN |
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1-317-24599-7 |
1-315-63009-5 |
1-317-24600-4 |
9781315630090 |
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Edizione |
[1st ed.] |
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Descrizione fisica |
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1 online resource (199 pages) : illustrations |
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Altri autori (Persone) |
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DanermarkBerth <1951-> |
ManchaiahVinaya |
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Disciplina |
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Soggetti |
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Deafness |
Quality of life |
Hard of hearing people |
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Lingua di pubblicazione |
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Formato |
Materiale a stampa |
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Livello bibliografico |
Monografia |
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Nota di bibliografia |
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Includes bibliographical references and index. |
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Nota di contenuto |
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Cover -- Half Title -- Title Page -- Copyright Page -- Table of Contents -- List of figures -- List of tables -- Notes on contributors -- Foreword -- Preface -- Acknowledgments -- List of abbreviations -- 1 Introduction: Experiences of people with hearing loss -- The need for this book -- Layout and content of the book -- Main elements highlighted in this book -- Evidence based practice -- Theoretical framework -- Stages of change model -- Person-centered audiological rehabilitation -- Biopsychosocial model -- Hearing loss and its consequences -- Encounters, interactions, communications, and emotions -- Understanding and describing hearing loss -- Longitudinal understanding of hearing loss -- Outcome measurement versus process evaluation -- Importance of process evaluation -- Process evaluation: examples from studies on hearing loss -- How best to evaluate the process of change in a person with hearing disability? -- Summary -- References -- 2 Functioning in adults with hearing loss -- Introduction -- Functioning and disability -- The International Classification of Functioning, Disability, and Health (ICF) -- The |
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conceptual model -- ICF - a classification -- ICF Core Sets for Hearing Loss -- Functioning in adults with hearing loss -- Summary -- References -- 3 Journey of a person with hearing loss -- Introduction -- Consequences of hearing loss -- Stages of change model -- Patient journey through hearing loss -- 1. Pre-awareness -- 2. Awareness -- 3. Movement -- 4. Diagnostics -- 5. Rehabilitation -- 6. Self-evaluation -- 7. Resolution -- Case examples -- Jenny's story -- Pre-awareness and awareness -- Movement -- Diagnostics -- Rehabilitation -- Self-.evaluation -- Resolution -- Alan's story -- Pre-awareness -- Awareness -- Movement and diagnostics -- Rehabilitation -- Self-evaluation -- Resolution -- Applications of the patient journey model. |
ICF and the journey model of person with hearing loss -- Summary -- References -- 4 Communication partners' journey through their partner's hearing loss -- Introduction -- Defining communication partners -- Third-party disability -- Consequences of hearing loss on communication partners -- Role of communication partners in aural rehabilitation -- Communication partners' journey -- Contemplation -- Awareness -- Persuasion -- Validation -- Rehabilitation -- Adaptation -- Resolution -- Clinical implications of the communication partners' journey -- ICF and the journey model of communication partners -- Summary -- References -- 5 Pre-awareness: Failing to notice or realize hearing loss -- Introduction -- Our sense of hearing -- Examples illustrating the effects of unnoticed hearing loss -- Scenario one -- At home -- At work -- Scenario two -- At home -- At work -- Scenario three -- Scenario four -- Discussion -- International Classification of Functioning, Disability and Health (ICF) -- Summary -- References -- 6 Awareness: Understanding and becoming aware of hearing loss -- Introduction -- Models of the patient journey -- Awareness, acknowledgment, and acceptance -- Example 1 -- Example 2 -- Communication partners -- Awareness of hearing changes -- Example 3 -- Example 4 -- The effect of perception of and trust in health professionals -- Stigma and perceived stigma of hearing loss -- Example 5 -- Example 6 -- Summary -- References -- 7 Movement: Making steps to seek information, help, and intervention -- Introduction -- Public health perspective/.concern -- Steps towards movement -- Factors influencing movement towards seeking help -- Influence of family and primary health providers -- Person-centered audiologic rehabilitation -- Summary -- References -- 8 Evaluation and diagnosis: Understanding, communication, and shared decision making -- Introduction. |
The process of evaluating hearing loss -- The role of hearing healthcare professionals -- Interpretation of clinical significance by hearing healthcare professionals -- The communication experience of persons with hearing loss and their communication partners -- Shared decision making -- Summary -- References -- 9 Rehabilitation: Learning and adapting to new methods -- Introduction -- Consequences of hearing loss -- Process from awareness to rehabilitation uptake -- Rehabilitation options -- Use of communication strategies -- Repetition -- Rephrasing -- Confirmation -- Specific queries -- Technological options -- Combination of communication strategies and technological options -- Effect of personal and environmental factors on rehabilitation success and... -- Care and maintenance of a hearing aid -- Summary -- References -- 10 Self-evaluation: Reflecting on experiences and whether rehabilitation has made a difference -- Introduction -- Case examples -- Holly -- Mark -- Process of self-evaluation -- Meaning-making: self-image and self-identity -- Holly's meaning-making -- Mark's |
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meaning-making -- Functioning: capacity and performance -- Holly's functioning -- Mark's functioning -- Expectations: under-estimation and over-estimation -- Holly's expectations -- Mark's expectations -- Evaluation of rehabilitation: positive and negative -- Holly's evaluation of rehabilitation -- Mark's evaluation of rehabilitation -- Person-centered care: understanding and application -- Holly's person-centered care -- Mark's person-centered care -- Summary -- References -- 11 Resolution - part 1: Recapturing the conversation - hearing loss and communication -- Introduction -- Conversation -- Sequence -- Context -- Joint meaning-making -- The division of labor -- Metalanguage -- What to do in order to recapture the lost conversation?. |
Pay attention to the creation of meaning -- Finding the right balance -- Personal responsibility -- Clear turn-taking benefits all -- ICF and conversation -- Summary -- References -- 12 Resolution - part 2: Continuing to adapt to and live with hearing loss -- Introduction -- The impact of hearing loss - case examples -- Susannah -- Louis -- Anne -- Jake -- Hearing epidemiology: principles and two examples of prospective cohort studies -- Netherlands Longitudinal Study on Hearing -- Longitudinal Aging Study Amsterdam -- Psychosocial health effects of hearing loss - evidence from epidemiological studies -- Emotional and social loneliness -- Findings from NL-SH and LASA -- Depression -- Findings from NL-SH and LASA -- Psychosocial health effects due to the rate of decline in hearing -- Findings from NL-SH and LASA -- Emotional and social loneliness -- Depression -- Implications of subgroup effects for clinical and future research practice -- Summary -- References -- 13 Examples of the journey through hearing loss -- Introduction -- Research about life change -- Psychosocial adjustment to hearing loss -- The longitudinal study -- The first stage (before): striving back and tipping point -- Triggers for change -- The significance of the tipping point -- Summary: the first stage before rehabilitation -- The second stage (during): mourning and exploring -- Summary: the second stage during rehabilitation -- The third stage (after): rebuilding, restoring, and stabilizing -- Summary: the third stage after rehabilitation -- Maintenance work -- Comments on rehabilitation -- Summary -- References -- 14 Practice implications of the patient journey model -- Introduction -- The possible patient journey -- Changing behavior -- Person-centered care beyond the clinic -- Ida tele-care -- Mentoring through the patient journey. |
Examples of the use of journey model by hearing healthcare professionals -- Summary -- References -- Appendices -- Appendix 1: Brief ICF Core Sets for Hearing Loss -- Appendix 2: Comprehensive ICF Core Sets for Hearing Loss -- Index. |
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Sommario/riassunto |
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Hearing loss is a common but often poorly recognised condition which can have multiple negative impacts. Based on a model of patient-centered audiological rehabilitation, this textbook explains why it is important to understand both patients' own experiences, and those of their communication partners, over time. It explores the physical, mental, emotional and social consequences of hearing loss from initial onset to rehabilitation, illuminated by first-hand patient accounts. Aiming to promote the inclusion of the patient and close relatives in the process of rehabilitation, it makes an important contribution to evidence-based practice in the field of audiology. |
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